Volunteering | Include.org

Volunteering : The unexpected benefits

Volunteer Charlotte smiling and playing atambourine

My name is Charlotte, and earlier in 2024 I was nominated for a Community Pride award for the volunteering I do at work and outside of work too.

As a result, I was asked to share my experiences with other civil servants. This blog for Include has been put together using the notes I made for the talk I gave to 4,000 people at work.

I volunteer with The Include Choir, a sing and sign choir for people with communication disabilities.  

How it started

So, how did I end up doing that, well when my youngest child started high school, I suddenly found for the first time in many years, I had space, not just in a practical or physical way, but also in my head and thoughts.  In my adult life I was missing a sense of belonging that seemed so easy to come by in childhood.   I also had the realisation that even though I love my job, if I could do life again, I would like to explore a career in Speech and Language Therapy.

I researched volunteering in my community, which led me to complete a form on the Surrey County Council website. 2 days later a lady from the council phoned me and said they had found me an opportunity.  I was to turn up at 6pm on a Tuesday at a local venue to help with a sing and sign choir.  Alright I said.

Zero Experience!

Sometimes you just have to throw yourself in the deep end – I have no musical ability, I can’t sing, and have zero experience of assisting adults with learning disabilities, and just to top it off, at that point, I had never heard of the word Makaton.

Volunteering in Inclusive Communication

The Include Choir in Epsom standing up and warming up - hands above heads!

My volunteering opportunity was for the charity, Include.org – it was set up by a speech therapist who realised that just because people had communication needs, that should not limit their self-expression.

Inclusive Communication means recognising, respecting and using all forms of communication – not just the written and spoken word.

Members of The Include Choir performing in santa hats

Lots of people find it very difficult to understand the spoken word alone. This includes the majority of people with a learning disability, dementia, and people who have had a stroke or a brain injury.

About the project I help to run

Charlotte an Include Choir Volunteer and Sarah and Include Choir Supported Volunteer stand at an event with some signs that say Include.org and Include Choir

I help with the charity’s Include Choir project – and it is so much more than a choir. We have physical props, so if a member is non-verbal, they can hold one of our props, or use an instrument.  We also use Makaton sign language for all the songs, they are projected up onto the wall with all the individual signs, so choir members are able to sign and sign, or just sign, whatever they feel comfortable with.

For those of you who don’t know Makaton its different from British sign language, Makaton does have elements of mime and it is much simpler and more descriptive for the users, so is a very good communication tool for those who have learning or communication disabilities.

Unexpected benefits

I have been volunteering with Include for 2 years, and I’d like to share the unexpected benefits of doing so.  

Firstly, and most importantly, it is fun!!  I am wanted, I am needed and I contribute. The sense of belonging and value this creates to me personally is indescribable. 

Harry and Include Choir Member and Charlotte an Include Choir Volunteer are wearing their Choir tshirts and talking to each other

It is incredibly liberating to be involved with a group of people who have no interest in your day job, your fashion sense, what you watched on telly last night, or if someone liked you on Facebook.  The choir members require so very little from you, eye contact, a smile and occupying the space next to them whilst you belt out a tune on a tambourine makes them feel seen and heard. 

Real impact – not just on the day

Tea is served from a hatch at The Include Choir in Epsom by two volunteers

I have made loads of new friends, other volunteers, care workers and choir members. When I am at choir, that is the realist version of me.   

Coming into work on a Wednesday, having been at choir on the Tuesday, I am happier, calmer and more positive.

On many occasions the choir members have brought me to tears, seeing them grow and develop in self-confidence, blossoming into their own very best potential is extremely moving.     

I have noticed that over the last 2 years, my leadership style has changed, I am a much more compassionate empathetic leader, bringing with me all the knowledge of communication and how it impacts others into the workplace.  I’ve always known, but now it is so apparent to me, that not all disabilities are revealed or visible, so when communicating with others, the most important first step is connection – then communicate.

Top Highlight

I have a few highlights over the last 2 years, my biggest one was when we performed with the Choir at Kew Gardens in the glass house for the Wedding Planner annual awards show.   It was a black-tie event, and we totally smashed it, up on stage, singing and signing our hearts out – we got a standing ovation and raised so much money for our charity, a brilliant night.  

We were there to let all the wedding industry leads know that people with disabilities fall in love like everyone else, and have ambitions of marriage – so not to forget them.

Final Word

Include Choir Volunteer Charlotte sings with her hands held near to her face Makaton signing

By volunteering it gives you a chance to explore and lean into the good stuff – you have nothing to lose.

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

Student volunteers: key to an inclusive future

It’s Student Volunteering Week! About a third of all of Include’s
volunteers are student volunteers, so we’d like to take this opportunity to
send a massive THANK YOU their way! They help us every day to
spread the message of Inclusive Communication.
Three of our volunteers have kindly take time to share their experience
of volunteering:

Name: Sarea, English Undergraduate

Time with Include: 3 months 

Role: Newsletter Co-Editor

Sarea has quickly become invaluable in helping us to create our weekly accessible newsletter – keeping our members connected and helping everyone to tell their story 

Sarea says:

 “Whilst Volunteering at Include, I have learnt a lot about communication difficulties and how ‘no one size fits all’. Thus, it is essential to consider a lot of factors when writing, for example the formatting I use and ensuring I am consistent with headlines. I have started to think more inclusively during my volunteering experience by following the important values and missions that Include promotes, like making the world better at including people with speech difficulties.

Volunteering at Include has meant that I’ve learnt a lot about sign language and how communication can take place in various ways so everyone can take part and actively engage. My favourite part of volunteering at Include has been taking part in the tea breaks where I get to meet all the lovely faces that are part of include and hear about how much they enjoy taking part in all the events Include has to offer.”

Name: Jennifer, Speech & Language Therapy Postgraduate 

Time with Include: 7 months  

Role: Session Facilitator & representative for CardMedic

Jennifer uses her speech and language therapy skills to help us in a range of ways. The Include Choir are  impressed with her cake baking skills too!

Jennifer says:

 “Include has given me a chance to really put my knowledge in Speech and

Language Therapy into practice to support individuals living with learning disabilities. I help facilitate members’ socials and am also part of a project to develop an accessible app to improve communication in hospital settings with CardMedic. These are very rewarding as I can see that my work has a positive impact on people’s daily life in many different contexts.

Volunteering with Include has inspired me to think more creatively when working with learning disabilities.  I love to hear all our members’ fun stories during our tea breaks, and it’s truly a delight to be part of this community!”

Name: Jasmine, A Level Student 

Time with Include: 2 years

Role: Graphics Creation 

Jasmine has been with us since the days when we could sing in one room together! She has adapted brilliantly to the virtual working environment.

Jasmine says:

“I have had the loveliest experience with the Include Choir. I have learnt so much about communication difficulties, about the supportive and caring community that Include provides for people with communication difficulties and their families, and most of all, about the amazing lengths Include goes to make everyone – choir members and volunteers alike – feel included. 

I really wanted to volunteer with Include because I want to be a psychologist when I grow up; I am intrigued by the way music can help people express themselves, particularly when they have communication difficulties.  I love to design posters and flyers and, with Include’s teaching and guidance, I’ve learnt how to make them user-friendly for the choir members. 

One of my favourite parts about having volunteered with Include has been learning Makaton. Not only did this allow me to help sign during online singing sessions, but it was just really fun! The staff and volunteers have been so welcoming and kind, and I am proud to have worked alongside them to make those with communication difficulties feel understood and included.”

Hear from more volunteers about their experiences 

Find out more about our current volunteering roles here

Nina Bromham
Nina Bromham
Volunteer Coordinator