fundraising | Include.org

The Long And Winding Road Of Charity Leadership

CEO and founder of Include, Alix Lewer, decided to mark the charity’s tenth anniversary with a challenge – to walk 100 kilometres across the South Downs in just 24 hours! In between training, running Include and raising two children with their own communication needs, Alix took the time to speak to me before and after the event to share what motivated her to take on this challenge, how it felt and what she hopes the funds raised will bring to Include.

Before the challenge

Alix running carrying a hatstand

‘I have the sort of brain that likes to join dots. I like symmetry and patterns, so in my head I had to do something with the number 10 in it. Last year I ran 5 kilometres carrying a hatstand and gathering our communication objects en route to mark my 50th birthday (as you do). I’ve run 10km before so that didn’t really seem special enough to mark the occasion. I love the South Downs, and when I saw the hundred kilometre challenge and learned of the partnership offer from Ultra Challenge which gave a generous discount on the entry fee if raising funds for Include, I thought – this is it!’

‘A lot of people have asked me how my training is going, and I must be honest, running a charity while looking after two small boys with ADHD/autism throughout the summer holidays has not left a lot of free time for training! I confess that my training has mainly consisted of buying some good quality socks. However, I love running/jogging anyway, so I try to fit in a run at least 3 to 5 times a week. When I was up in Manchester visiting a relative, I decided to walk everywhere with my rucksack instead of taking public transport. I just hope this is enough!’

Despite Include’s success in supporting over 200 members and turning over £200,000 for the first time since its founding, Alix shared that she has found the prospect of an extreme physical challenge far less daunting than running a charity.

Alix working with an Include.org trustee

‘I don’t like asking for help, which is not ideal for a charity founder, where we are permanently in a position of asking for financial or in kind support. This challenge feels like the opposite of that; there will be no opportunity for anyone to do this other than me. I want to prove to myself that I can just keep going even when it feels impossible and no matter how painful it is. Except for the socks (which I’ve learned are an obsession for all Ultra distance participants), the qualities that you need to run a small charity are the same qualities you need to walk 100km in a day – endurance, resilience, and blind optimism that it will all be all right in the end. I am hoping this will see me through to the finish line – and see Include into a future where it can reach many more people and doesn’t rely so much on just a few incredibly hard working few.’

2 people using talking mats

In discussing her anxieties leading up to the challenge, Alix shared that the process she’s been preparing for isn’t unlike what the members of Include, and others with communication needs, work through every day. For most people, having a conversation is like a short walk down a familiar road, a simple journey from A to B. For those with communication needs, the same conversation can feel like a long and tiring trek across unfamiliar territory. The same way that Alix is persevering through optimism and the support of her friends, family and colleagues, our members persevere every day through their own strength and the support we are able to give. I know that Alix will be taking great inspiration from them on this challenge! 

After the Challenge

Alix at the finish line looking really proud holding her medal

That inspiration of the perseverance of people with communication needs proved to be just what was needed. Alix completed her 100km walk across the South Downs in just under 24 hours. Huge Congratulations to her! 

‘Beautiful. Exhausting. Exhilarating.’ were the 3 words Alix chose to describe the experience. 

‘The most challenging part of the walk was in the early hours of the morning. At 3am, it was pitch black; I had been walking since 8.30am the previous day and I still had over 30km to go. At one point, I lost touch with the group, and that was tough. During the day, I had enjoyed the solitude and time for reflection of walking on my own, but at night, being able to talk to other people was essential and allowed you to focus on the conversation instead of your feet (though I admit there was a fair bit of sock-related discussion). When I found myself on my own on a steep hill in the dark, I did wonder what I was doing – and at that point it was only what my mother calls ‘sheer bloody-mindedness’ and I prefer to call ‘determination’ which kept me putting one foot in front of the other. As I suspected, running a small charity proved useful preparation, even if I hadn’t managed to do much conventional training.’

‘It’s hard to identify the ‘best’ moment. There were many. The South Downs is so beautiful, and the benefit of walking is that your mind slows to a walking pace, allowing you to notice and feel so many tiny, wonderful details.

Again, this made me think of interacting with people who don’t use words to communicate, you need to watch carefully for the tiny changes in expression, sound or movement that tell you you have made a connection – and which are magical when they arrive.

Alix happy to reach the rather small 100km sign!

Having said that, I can’t deny that the big milestones mattered too. Arriving at the 100km mark felt incredible – though also a little frustrating, as it turned out the finish line was another kilometre away! The hug I got from my boys at the finish made that extra kilometre completely worthwhile.’

Alix said it was hard to express the gratitude she felt for all the people that had donated or offered advice, support and encouragement. ‘Everyone has been brilliant – but a couple of words and moments do stand out for me. My colleagues at Include have been phenomenal (Emily even offered to walk the 50km in the dark with me!). Jill, who also works for Ultra Challenge, went out of her way to support me – and was there at the 3rd rest stop, making sure I had everything I needed. Anna, who runs our Include Outdoors project, and knows a thing or two about exercise gave me a care pack of high protein snacks, and a beautiful card with the perfect messages, which I took with me.

Everyone’s messages of support meant so much – and to whoever the anonymous donor was who suggested singing ‘Is this the way to Amarillo’ to keep me going – thank you, it worked!’

Thanks to the generosity of the Include community, Alix raised £2800! So what will the money help Include to do?

‘The money raised will help us fund an exciting three-year development strategy, which we hope will help us capture the essence of what makes Include the life-changing service that it is and help us bring this to more people. Look out for our ‘Be an Includer’ campaign – Include doesn’t only provide services, it helps others to be more inclusive too so we can build more inclusive communities everywhere. Like the Ultra-Challenge, this is a long, long journey, but the funds that people have generously donated will enable us to take the first positive steps along that path.’

Include members outside with both hands raised happily joining in

And finally, what advice would Alix give to anyone considering undertaking an Ultra-Challenge event?

‘Do it! I have already started thinking about the next one. I really can’t express the sense of accomplishment you will have at the finish line, and the fascinating people and stories you will encounter along the way.

Oh, and of course, make sure that you have invested in several pairs of good quality socks.’

If you, like Alix, are interested in taking on an Ultra Challenge event and raising funds for Include, simply pick your location and distance on our Action Challenge page to get started. You can register directly or contact us at info@include.org.

Or if you’d like to help Alix’s efforts go the extra mile to build more inclusive communities, you can donate here to take us one step further towards our goal.

Alix standing infront of the South Coast Challenge sign
Eglantine
Eglantine
Communications assistant

A lot of miles for Include

How did it start?

“I found out about Include from a leaflet I took when I was at The Grange. I wanted to meet new people and I already liked singing and I did Makaton signing too.”

Amelia at The Include Choir singing and Makaton signing. she wears a purple top and glasses

“I’ve found lots of good things to do with Include. I do the Stroll and Sign walks, and nearly all the choir events. Singing and signing and volunteering as Deputy Choir Rep for The Include Choir in Epsom,” says Amelia.

How far would you go for Include?

Maria (Amelia’s Mum) says; “It’s over an hour to go to Include sessions (and over an hour back!), but Amelia loves it so much that we travel from where we live to go to Include. We wait until it’s finished and then drive home again. We are looking to move house and one of the factors in our decision of where to live is access to Include. We want to be closer!”

Amelia is taking part in Run Reigate on 22nd September to raise funds for Include. Maria says; “She loves that kind of stuff – and she is doing this mainly because she wants to raise money for Include.” She will be doing a Half Marathon – 13 miles. “She is quite fit and athletic – she is always running about with football, cricket all sorts. She has all the stamina and energy she needs!”

Ameila says; “I am looking forward to running the half marathon.”

That’s a lot of miles for Include in one way or another.

Why does Include matter to Ameila?

“She always tells everyone about Include – “please come along, or please sponsor me” – she tells everyone how wonderful it is – she loves it basically,” says Maria.

“My favourite thing so far was going to Wisley for a Stroll and Sign walk. I like nature, everything about it – and walking – being active with other people. I like the exercise and it’s good for my wellbeing and mental health,” says Amelia.

Maria adds; “There is generally less on in the holidays, so to go on an Include Zoom or walk at Wisley in the holidays means a lot. In term-time too, when she comes home from Choir on Tuesday nights or from one of the weekend walks – she is always really happy. She is quite inquisitive and comes afterwards and says I saw this and I saw that.

Amelia sums it up; “Include makes me happy – I’m excited for Tuesdays to go to choir. I can’t wait to go back after the holidays.”

Making us blush!

“The Stroll and Signs are great – and the singing and signing it’s the unique mix that Include offers – it’s quite diverse,” Maria says.

“Alix is a nice person, she talks to me. And the volunteers help a lot too,” says Amelia.

Mum adds; “Alix is amazing. She wants to always help people – she is so giving – an amazing person. And thank you to the volunteers too for supporting Amelia – everyone is so amazing – it’s a big friendly lovely environment.”

The fun and learning keeps going…

“I sing the songs and sign sometimes and teach them to my mum.”

“Yes, Ameila never forgets about what she does with Include – it’s always on her mind.”

Sponsor Ameila for her Half Marathon:

Help Amelia and Include to keep going! Here is the link to her fundraising page if you can donate anything at all, it will be hugely appreciated:

https://www.justgiving.com/page/amelia-solari-1725010645489

And a HUGE Thank You to Amelia for running for Include.

We are in awe of you.

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

Why run for Include?

“Here we go again!” Says Martin…


For me this is Run Reigate number 3 and once again I am delighted to be running for the amazing charity, Include. There is one small change though. Having run the 10km race for the last 2 years, this year I have decided to challenge myself to the half marathon distance. 

Photo of a team of 7 people standing side by side in a row at Run Reigate 2023 in Include.org tshirts standing in front of an Include.org stand or gazebo

‘Leveling up’ seemed like a good idea at the time, but as I write this the reality is hitting home that a half marathon is precisely 11.1km further than my usual 10km. Hardly an insignificant increase! 

Although the increase in distance is significant and will undoubtedly require some extra training, I don’t mind at all. In truth I think it’s a tiny sacrifice to support Include and the important work they do in our local community to ensure people with communication difficulties aren’t excluded from our society. 

Personal motivation

Family photo of Martin with his wife and two boys

For me this is a cause that feels quite personal. As the father of 2 boys, Josh and Ben, who struggle with communication difficulties (more from them in a minute) I see daily the issues they face.

Whether it’s being talked over by people who don’t want to wait for their responses or excluded altogether it’s something you never get used to seeing, and quite simply it’s not something I want for their future.

Here’s the thing. The fact that they can’t communicate in the traditional format as well as others doesn’t mean that what they’re thinking or want to say is any less valid, and the same is true for everyone with a communication difficulty. 

Photo of Martin with his sons Josh and Ben and the workds Martin's Story - Martin is running a half marathon for Include.org

Why run for Include again?

Most of us know that the more we understand others the better life gets, not just for them, but for all of us. And that’s why Include is such an important charity to me and why supporting it means so much. Through their work Include breaks down barriers that are created by communication difficulties and helps to ensure that more people feel included.

What Include also does is bring happiness to peoples lives.

Through initiatives such as their Choir and their Stroll and Sign walks they provide fantastic opportunities for all members of our community to get out, be active, socialise and just have fun.

As a sports coach who works exclusively with people with additional needs at PMActive and East Surrey Hawks Football Club I know how important this is. It gives purpose and a sense of belonging, but most importantly it provides a place where people can just be themselves. It’s sounds really simply but that, in a nutshell, is why I’m running for Include again this year.

I love how they help to ensure there is a place for everyone in our society. 

Living with a communication difficulty

I promised earlier to share more from Josh and Ben. When writing this blog I asked them how it felt to live with a communication difficulty and why inclusive organisations like Include are so important.  I think their explanations are much better than mine …

Because of my communication difficulty I find it hard talking to people and doing new things, even when I really want to. People like Include, the Hawks and PMActive help me learn new things and get better at sports and other important skills. Josh

Having a communication difficulty makes it hard to explain what I’m thinking and that means things like going to the shops can be hard. Places like Include and My football club the East Surrey Hawks help people with disabilities feel safe, included and happy. Ben

Just Giving

If you can support my run with a donation, no matter how big or small, it really would mean so much to Include. It’s a small charity so every penny counts! 

Donate to support Martin and see his training updates on Just Giving: Martin King is fundraising for Include.org (justgiving.com)

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

How do you run an Inclusive Quiz?

Last month we ran our first ever in person fundraising quiz!

In lockdown we hosted one on Zoom but this time it was in a lovely setting – The Old Council Chamber in Reigate.

Being Include.org this was not a standard quiz. It was an inclusive one.

What helps to make a quiz inclusive you may ask? Well…here are a few things we did…

Role Model Hosting by Ciara

Although the Mayor of Reigate and Banstead was ‘host’ in that he invited us to use the Town Hall venue, he took a seat with one of the quiz teams on the night, and the quiz was presented by our Patron Ciara Lawrence.

Ciara recently spoke on our first ever Podcast and made it clear that as a person with a disability she is on a mission to ensure more of the world sees people like her for who they are and what they can do.

Well, we now know for sure…Ciara can brilliantly host a quiz evening, engaging a whole room of people with authority, style and warmth!

Something for everyone

People played in teams and we had a real mix of rounds and formats which all played to different people’s sensory strengths:

  1. Hearing – Name the song
  2. Signing – What does the Makaton gesture mean
  3. Taste and smell – Guess the crisp flavour
  4. Touch – Identify the household item hidden inside the sock
  5. Sight – Work out what the items are that we photographed very close up / micro
  6. General Knowledge – Answer audio / video questions from supporters like TV’s Dan Walker, Marcus Ramtohul (also in our first Podcast) DJ SUAT and Cllr Jonathan Essex
  7. TV knowledge – Easy Read questions from The Include Champions

We’re delighted to share the TV Quiz questions as the next FREE Easy Read resource in our series. Download Here (audio version to follow very soon):

Inclusion Wins!

There is always more to be done in terms of inclusion. But we did our best with limited resources and we were delighted that the team that won The Include Quiz was a mixed group of people – some of whom only met each other that night. Meeting new people is not always easy for people with communication needs, so that in itself was a big win.

This team, called “The Team That Shall Not Be Named”, included volunteers, choir members and parents. There were people with autism and visual impairment, playing alongside people without additional needs. There were volunteers who have literally just joined Include working alongside members who have been around for years.

We know that there was a team with regular quiz winners in it who were defeated on this night. But this was not a regular quiz!

So that’s a win in our book.

Want to make your own event inclusive?

If you want to host an inclusive event why not speak to The Include Champions Group to get their ideas and tips based on their lived experience of being a person with a communication need and/or disability? Enquiries to info@include.org

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

There is no magic wand!

I first found out about The Include Choir by word of mouth, from my friend Hannah. She recommended it to me because she knows I enjoy fun things and singing takes your mind off your worries.

When I came along, I found that everyone is very friendly, this group does not separate out one type of person from another.

If people have autism or mental health needs etc they are accepted. Everyone is accepted for who they are.

I decided to Run Reigate to represent Include.org and help raise money for the charity and its work. It is the first time I have done a race to raise money.

My journey to doing this half marathon was a long one! It has taken me a few years to get here.

There is no magic wand – I had to put the graft in!

I was very good at running when I was in college, but I stopped doing it and wasn’t even able to do a 5K at first. What got me back into running was seeing my friends Tina and Andrew, who I met at the Prospero Theatre group, doing so much running. Tina did the London Marathon and Andrew is training to do an Ultra marathon which is 50miles and also a 100mile race – they have inspired me and helped to coach me.

Once I could do a 5K comfortably, I gradually built up from there to a 6K and 7K and so on. Over the last 2 or 3 years I have got better and better at it. It goes to show that if your body is healthy enough you can do it.

I will never be like Mo Farah winning gold – but I still love it and for me it’s more about the journey than getting a gold medal.

Run Reigate was actually my 3rd half marathon! I did Denbies and Woldingham, and for those I had never run that far before (and not with so many hills), but once I got to 12 miles I just pushed myself that extra bit to get to the end.

I feel I haven’t achieved a lot since my college days – but I was ready to take on my next challenge and fundraising for a great cause like Include.org has made me feel like I have achieved a lot. It is a super feeling to help the choir – not just running for myself. 

The day of Run Reigate didn’t go completely smoothly for me! I was going to get a lift there but the person who offered forgot and so I was then running late and had to drive myself there. I was still in Redhill at 9am and my race started at 9.15am in Reigate! When I finally arrived, I had to jump over the railings to get to the start line on time! I had my backpack on too – but it had my water in it and I knew I would be glad to have that.

There was a good vibe at Run Reigate. I enjoyed seeing everyone – some people also running spoke to me. They reassured me when I had to stop for a comfort break that I wasn’t the only one to need to do that!

It’s not just the running but the people, the stalls, the music – that’s the reward after the run!

The weather was also good and I enjoyed exploring parts of the countryside of Reigate and Horley that I wouldn’t normally see.

And finally, it was great to see the finish line ahead! 

The Include Run Reigate fundraiser is still going. Please donate here: Team fundraiser – Run Reigate Include.org Team (peoplesfundraising.com)

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead