Inclusive Communication

Breaking Down Barriers – there’s an app for that!

When healthcare information is accessible and understandable for all, it can literally save lives.

Alix Lewer, Founder and CEO of Include and The Include Champions helped to develop an accessible version of the CardMedic app…a tool that breaks down barriers to good communication in healthcare.

It’s a partnership that we are really honoured to be part of. We wanted to know a bit more about what the people at CardMedic thought, so we asked!

Rachael Grimaldi – Co-Founder and CEO of CardMedic

What is CardMedic’s mission?

At the point of care, the inability to communicate is the largest single contributor to health inequalities, and patients with additional communication needs make up nearly 50% of the population.

CardMedic’s mission is to break down communication barriers between healthcare staff and patients by making healthcare information accessible and understandable for all.

We’re committed to inclusive communication and believe in acknowledging and accommodating everybody, regardless of their communication needs. Our aim is to provide intuitive and cost-effective technology that empowers clinicians and patients to communicate quickly and efficiently across any barrier, enabling more effective delivery of care, reducing health inequalities, and improving patient outcomes.

Why did CardMedic want to work with Include?

We were really keen to work with Include because we share their mission to break down barriers and create a more inclusive world. At CardMedic, we recognise that accessible information is vital for ensuring equitable care delivery, so we couldn’t imagine a better partner.

Alix Lewer’s expertise as a Speech and Language Therapist, as well as Founder and CEO of Include, made it a no-brainer. She and her amazing team have been invaluable in helping us improve communication in healthcare and increase our understanding of the challenges people can face.

Together, we’ve been able to develop innovative solutions and resources that empower us to think differently about how we communicate. Particularly in a healthcare setting, we’ve learnt how to effectively communicate with patients with diverse communication needs and improve health outcomes for underserved populations.

Our shared vision of inclusivity and accessibility made us confident that partnering with Include would help us work towards a more equitable healthcare system for all.

How did the partnership help your project?

Alix is incredibly knowledgeable in the accessible information space and about the Mental Capacity Act (2005). She understands that inclusive communication means recognising and respecting all forms of communication–not just the written and spoken word.

Drawing on her knowledge of inclusive practice in health and social care, having worked as a Speech and Language Therapist in the NHS, Alix contributed to the initial development of an accessible version of the CardMedic app. Include’s lived experience Champions Group also continues to work with us to review our content regularly and provide feedback about accessibility.

Our partnership with Include has helped us refine our content to ensure that it’s as accessible as possible to individuals with diverse needs, including those with learning differences, visual and hearing impairments, and language barriers.

Alix’s expertise has helped us convert our library of scripts covering a vast array of clinical specialties and sub-specialties into Easy Read, at a reading age of 6 or under. This essentially means it is accessible to many more people than traditional information would be, both children and adults.

What would you say to others thinking of partnering with Include?

For anyone working in the accessibility, language, and communication space, they would be remiss not to reach out to Include! Include promotes inclusion and wellbeing, empowers people with additional communication needs, and ensures that they have equal access to services, facilities, and opportunities. They do a fantastic job of collaborating with businesses, educational institutions, and other organisations to help raise awareness of accessibility and provide practical solutions for inclusivity.

Include also offers brilliant training and consultancy services to help organisations improve their practices by making them more accessible. By partnering with Include, you’ll gain valuable insights, guidance, and resources to enable you to create a more inclusive environment.

The team are so friendly, and their expertise will help you address communication barriers and send out a powerful message about your commitment to inclusivity. All in all, we’d highly recommend partnering with Include!

Get in touch with Include, please email : info@include.org

More information : https://www.cardmedic.com/

(She won’t tell you herself, but while we are here and talking about healthcare…Alix won a Royal College of Speech & Language Therapists’ Giving Voice Award for voluntary work with The Mental Capacity Act Clinical Excellence Network – Raising Awareness of Supported Decision Making at End of Life.)

Penny Sims
Communications and Partnerships Manager

Adjusting for Sensory Needs

Free Easy Read

This week is National Inclusion Week which celebrates inclusion and encourages taking action to create inclusive workplaces.

One of the ways that employers can be more inclusive is to think about the sensory experiences of their employees. We found an interesting article on LinkedIn which talks about things like lighting adjustments, sensory break spaces and noise control.

Of course, sensory considerations are not unique to the office environment. People who experience their senses such as smell, noise, or textures in heightened or muted ways may need reasonable adjustments to be made wherever they are.

Many theatres are now good at taking sensory needs into account. For example, The Lyceum has a scene-by-scene Sensory Synopsis of The Lion King available on its website. In addition, during relaxed performances the theatre turns off noisy hand-dryers in the toilets and provides alternative ways to dry hands.

Being in a healthcare setting can lead to heightened experiences – so it’s important that healthcare staff and those designing healthcare settings take sensory needs into consideration and act on requests for reasonable adjustments.

We had the founder of The Sensory Projects www.thesensoryprojects.co.uk Joanna Grace as a special guest at one of our Champions sessions. She talked with us about the reasonable adjustments that autistic people may need to help communication in a healthcare setting.

Many thanks to Jo for kindly sharing her own personal insights of how her autism affected her experience of healthcare during pregnancy and birth.

The NHS’s Sensory Friendly Resource Pack (Free here: NHS England » Sensory-friendly resource pack) describes 3 types of sensory experiences that people with autism may experience:

hyper-sensitivity:
- extreme over-reactivity to sensory input
hypo-sensitivity:
- extreme under-reactivity to sensory input
sensory-seeking:
- unusual interest in aspects of the sensory environment.

The Include Champions have produced a new FREE Easy Read document to share about reasonable adjustments for sensory needs.

Download it free here:

Sensory Needs Reasonable Adjustments FREE EASY READ Download

Listen to it on SoundCloud

Penny Sims
Communications and Partnerships Manager

Meet Beth

Everyone is welcome

When I talk to people about Include, I always say how much it has made a huge, positive impact in my life and improved my quality of life, given me a purpose and that it is the BEST charity I have ever come across where EVERYONE is included, everyone is welcome.

I want the world to know that there is no place anywhere that makes you feel so included, safe, comfortable, happy and purposeful as Include does.

How it started

I first found out about Include by research. I moved back down to Surrey from Coventry, and wanted to find out if there were any Makaton groups nearby and that’s how I came across Include. I messaged Alix and it all went from there.

I wanted to get involved because I was very lonely and I enjoy Makaton so much, and use it a lot personally.

At first, I was very anxious, only because I always am when facing new places, people and situations BUT this didn’t last long! Soon I was comfortable and felt ‘included’ and part of an amazing community and surrounded by lovely, genuine people.

When I first went to Include, I started off just joining in the choir every Wednesday evening in Redhill.

Growing in confidence

It wasn’t long before I wanted to volunteer, make a difference and help others.

I also started to attend some of the Stroll and Sign walks on Saturdays, going to performances, and helping to design the new ‘Star of the month’ certificate and another certificate.

I am also now part of the Champions Group which I really enjoy and feel we all make a difference by working on and designing Easy Reads for people and giving examples and explaining things like ‘reasonable adjustments’ etc.

Since being part of Include, I have gained confidence, made friends and have something to really look forward to each week; helping others, having fun, being included and having a purpose.

Signs of Change

Although I already knew most Makaton signs before I came across include, I have gained more skills from The Include Choir and the Champions Group. These include improved speaking and listening skills, trusting people because I feel comfortable with the people I’m surrounded by and learnt a couple more skills on my computer.

The things I do with Include really help me day to day and help my support workers, family and others around me to understand and communicate with me, and others in a better or different ways.

When I struggle, I can become non-verbal, so for support workers and family to know basic Makaton signs is very important and helpful. I am now able to feel confident to teach them the important basic signs that are useful so that they can best support me.

I think it is important for people in all sorts of jobs to know basic Makaton e.g. hospital staff, doctors, teachers in schools, dentists and other professionals that might come across people who may use a different form of communication like Makaton.

We are all different…

My favourite quote is ‘we are all different, but all equal’ and I feel everyone at Include is treated equally no matter what their needs are and this makes me very proud to be a part of such an amazing group.

The next step in my Include story is to do volunteering more and make more of a difference, help people more, improve more skills and gain more confidence.

I have a goal and that is to do a solo Makaton song at Christmas, I hope I can get enough confidence in time.

Discovering Include is the BEST thing that’s happened and I am very grateful for all that everyone does to make it such a lovely, enjoyable group.

Penny Sims
Communications and Partnerships Manager

Meet Sarah…

Sarah joined Include in 2017. In the time between then and now Sarah has moved home a few times, navigated Covid and had hospital stays. Throughout all the changes and challenges Sarah has remained loyal to Include.

She is very thoughtful and brings so much to the charity – we are delighted to share what she has to say about Include and her role:

How Include Makes Me Feel

” Being part of Include helps me to be myself.

And it makes me feel proud and relaxes me.

When I come to The Include Choir, I feel listened to. There are people with and without disabilities and we all help each other. Together we raise awareness of communication needs. I am proud when my Support Worker joins in with the singing and Makaton signing.

The volunteers are great too – they set up and make it all run smoothly – they are non-stop like Alix – our Director! Alix is so good.

Singing makes me happy – even if I can’t get to choir one week I will join-in on Zoom.

Getting The Community Involved

The Mayor of Reigate & Banstead knows us – he likes our charity. He helps us get more empowerment and open it up to more people. At the Banstead Christmas lights switch-on he wouldn’t let The Include Choir leave! He just felt we were popular with the crowds.

At concerts and performances people in the audience ask questions and I like explaining about Include and telling them how I feel about it. I also like when the people watching join-in. When we performed in The Belfry shopping centre there was a kid who was blind dancing along with us.

I am Choir Rep for our new Epsom Include Choir. I would say to anyone; “come along – there is cake, it is fun and everyone is helpful.”

Part of the Decision-Making

My favourite song is the MCA (Mental Capacity Act) song. Choir members help to write the songs. I helped to write one about Covid too. Our songs are our own versions – with the words expressing our feelings and what’s best for us from our point of view.

I use Zoom to be part of the Include.org Steering Group and the Include Champions Group. It is really, really good to be involved with Include – when I’m part of these meetings I feel more involved. I am part of the decision-making and that makes me feel included.”

Penny Sims
Communications and Partnerships Manager

How do you run an Inclusive Quiz?

Last month we ran our first ever in person fundraising quiz!

In lockdown we hosted one on Zoom but this time it was in a lovely setting – The Old Council Chamber in Reigate.

Being Include.org this was not a standard quiz. It was an inclusive one.

What helps to make a quiz inclusive you may ask? Well…here are a few things we did…

Role Model Hosting by Ciara

Although the Mayor of Reigate and Banstead was ‘host’ in that he invited us to use the Town Hall venue, he took a seat with one of the quiz teams on the night, and the quiz was presented by our Patron Ciara Lawrence.

Ciara recently spoke on our first ever Podcast and made it clear that as a person with a disability she is on a mission to ensure more of the world sees people like her for who they are and what they can do.

Well, we now know for sure…Ciara can brilliantly host a quiz evening, engaging a whole room of people with authority, style and warmth!

Something for everyone

People played in teams and we had a real mix of rounds and formats which all played to different people’s sensory strengths:

Hearing – Name the song
Signing – What does the Makaton gesture mean
Taste and smell – Guess the crisp flavour
Touch – Identify the household item hidden inside the sock
Sight – Work out what the items are that we photographed very close up / micro
General Knowledge – Answer audio / video questions from supporters like TV’s Dan Walker, Marcus Ramtohul (also in our first Podcast) DJ SUAT and Cllr Jonathan Essex
TV knowledge – Easy Read questions from The Include Champions

We’re delighted to share the TV Quiz questions as the next FREE Easy Read resource in our series. Download Here (audio version to follow very soon):

Include’s Easy Read TV Quiz Q+ADownload

Inclusion Wins!

There is always more to be done in terms of inclusion. But we did our best with limited resources and we were delighted that the team that won The Include Quiz was a mixed group of people – some of whom only met each other that night. Meeting new people is not always easy for people with communication needs, so that in itself was a big win.

This team, called “The Team That Shall Not Be Named”, included volunteers, choir members and parents. There were people with autism and visual impairment, playing alongside people without additional needs. There were volunteers who have literally just joined Include working alongside members who have been around for years.

We know that there was a team with regular quiz winners in it who were defeated on this night. But this was not a regular quiz!

So that’s a win in our book.

Want to make your own event inclusive?

If you want to host an inclusive event why not speak to The Include Champions Group to get their ideas and tips based on their lived experience of being a person with a communication need and/or disability? Enquiries to info@include.org

Penny Sims
Communications and Partnerships Manager

Hello…we are the Champions!

Claudia, our new Speech and Language Therapy Assistant, who we introduced you to in December’s blog, has been getting to know The Include Champions Group a bit better.

We’re really proud of the Champions Group because they do some really important things, and we’d like everyone to have a chance to get to know the group better – not just Claudia!

So, our latest FREE Easy Read resource is made by the Include Champions about the Include Champions! It explains what the group does, why and how – all presented in an Easy Read format.

FREE Easy Read: We are the Include Champions Download

FREE Audio format on SoundCloud.

In summary, The Include Champions Group is a lived experience consultancy team, generating ideas, feedback and free accessible resources on important topics including the Mental Capacity Act and Inclusive Communication.

Members have real world experience of learning disabilities, autism and other communication needs.

Dedicated group members meet every week via Zoom, and there is always something important to discuss, analyse and provide feedback on.

Time to Talk Day (2nd Feb), which encourages people to have conversations about mental health, seemed like a good day to re-share two of the Easy Read resources produced by our group:

Kind Communication
Listening Skills

As our CEO Alix says in her guest blog for Browning York; “Today is ‘Time to Talk’ day – a day designed to promote conversation and communication to benefit everyone’s mental health. Let’s also think about the communication which uses more than words to include people – the biggest kindness of all.”

Penny Sims
Communications and Partnerships Manager

Something about The Include Choir

We have exciting developments here at Include.

This summer, very soon, we are launching a new choir!

We continue to build the original Include Choir (with rehearsals in Redhill), The Include Choir Online is still here too so people can join us on Zoom or Facebook live. If outdoors activity is more your thing, you can join our Stroll and Sign sessions…but right now we’re busy adding a new Include Choir group, which will rehearse in Epsom.

Both choirs will perform at community events and conferences in various locations across Surrey – and in other places like London. Not just in Redhill and Epsom.

You can find details of what is on and when on our website.

Easy Read – explaining about The Include Choir

As we start to introduce a whole new group of people to The Include Choir, we’ve been thinking about how we explain who we are and what we do to people who don’t know Include.org

To help with this, the Include Champions Group took a really close look at how we talk and write about Include. Even to the point of discussing if we use a capital G on the word group when we say Champion’s Group!

We double checked which of the accessible fonts is the most popular and we decided on Sofia Pro, because we like it and it is Dyslexia-friendly.

We also took great care to select the best photos and graphics to enhance our next FREE Easy Read which – you guessed it – is all about The Include Choir! An audio version is also available on soundcloud.

About The Include Choir, a FREE Easy Read Resource:Download

The things that make a big difference

Some people might think we’re “just a choir” – BUT a lot more goes into championing inclusive communication than just getting together to sing.

The little details that enhance inclusion and participation matter as much as the big steps forward – like launching a new choir. And without volunteers, none of this can happen – the big or the small.

We want to once again congratulate and thank our amazing volunteers who have been recognised as some of the very best with the MBE for volunteer groups – the Queen’s Award for Voluntary Service!

If you would like to join or volunteer or have any questions or suggestions about the new choir or anything else, please let us know by commenting below, via our social media or emailing info@include.org

Penny Sims
Communications and Partnerships Manager

Bumper Easter Easy Read

Our Include Champions were so inspired by spring and Easter, that the group’s ideas and have resulted in a whole pack of Free Easy Read resources, including a quiz!

Download the Easy Reads below and find the audio versions too. If you want to really test yourself look at the quiz first and the other things after!

Spring and Easter Easy Read Quiz QuestionsDownload

Click to listen to the Quiz Questions and Answers

Spring and Easter Easy Read Quiz AnswersDownload

Easy Read Easter StoryDownload

Click to listen to the Easter Story

Easy Read Spring and Easter Fun FactsDownload

Click to listen to the Fun Facts

From hot cross buns and the clocks changing, to Jesus’ disciples and daffodils…Ellie, Simon, Philip and Josh cover lots of themes that are relevant at this time of year!

Plus, our first ever Easy Read resource, which launched our free series last year, is all about Ramadan – so also very relevant this month.

Ramadan Easy Read Download

Our Champions have plans to share these resources with their own networks, from support staff and friends, to arts and social groups.

Who could you share these Free Easy Read resources with?

Penny Sims
Communications and Partnerships Manager

Feeling Thankful

To help express our gratitude for the Big Give Christmas Challenge 2021 donations to include.org we’ve dedicated our next Free Easy Read resource to the theme of festive thankfulness.

A Big, Big Give Thank you

We’re celebrating the fantastic response to our Big Give Christmas Challenge fundraiser! We managed to raise over £20,000! What an incredible act of collective kindness this is, despite the ongoing challenges of Covid, and other pressures at this time of year.

SO much kindness. We’re blown away! This funding will enable Include to do so much more. Wishes can come true!

Free Easy Read

To help express our gratitude we’ve dedicated our next Free Easy Read resource to the theme of thankfulness.

Thankful Festive Activity, Free Easy Read Instructions:Download

An audio / sensory version will be shared here too very soon (sorry for the slight delay)

The download includes interesting facts, ideas and templates to create a thankfulness themed Christmas tree (or decorated plant!).

Did you know that research says that people who show gratitude are often healthier – both physically and mentally? And they even sleep better!

Things we’re thankful for

We asked some of our Include members, staff and volunteers what they are thankful for. Here is a taster of what we found…

Simon said he is thankful for his new baby nephew, friends and family. He and Philip also shared something they are both thankful for – the enjoyment of singing and dance. You can see them perform together here: https://youtu.be/hnv6rFGLsDw

Philip said that being thankful makes you feel happy; “it feels good in your mind”. Philip also said “I am grateful for my best friends and Include – the whole group – it means a lot to me and Simon”…”and I am also thankful for the birth of Jesus”.

Ellie said that she is thankful for her nephew, her family and another of her groups – Bloomin’ Arts https://bloominarts.org.uk/ where she performs in various shows.

She is grateful for her Complete Shakespeare book. Ellie also loves birthdays and her advent calendar!

The whole group had a shared thankfulness for good food. Penny is happy she has found some really good gluten-free mince pies.

Simon loves a roast. Ellie is looking forward to treating herself to some nice foods on her birthday.

Alix said that she is thankful for friends – old and new, as well as enjoying books and seeing festive lights.

Alix and Penny agreed they are both very thankful to all the wonderful volunteers who help Include all year round.

Jen said that she is grateful for friends, Include Choir, her parents and her plants. She has even decorated some of her plants!

We were all thankful for our Christmas decorations too. Josh did a great paper tree…

We talked about the fact that not everyone finds it easy to feel positive at Christmas time. Some people might miss loved ones or may not have a home. We are grateful if we can see loved ones and have a place to call home.

No matter who we are, or how we communicate we are often grateful for similar things.

Once again, from all of us here at Include, we want to say a great BIG thank you to everyone who supports us. The Big Give Christmas Challenge success in particular, will help us continue to build a more inclusive community in 2022.

Penny Sims
Communications and Partnerships Manager

Shared Lives – Singing and Signing together

Mandy and Michelle are members of The Include Choir.

Mandy is Michelle’s Shared Lives carer. The Shared Lives scheme matches adults who need care with someone who can provide support. Family and community life are a shared experience for both.

Michelle and Mandy joined The Include Choir over two years ago. Before the pandemic.

Mandy says, “When we could return to choir in person earlier this year, I was unsure about how Michelle would react.

I told her just before we were to leave. She leapt from her seat shouting “choir!” She then sang the Include Choir welcome song at the top of her voice before rushing to get her coat and shoes.

She was beyond happy to return and so pleased to see everyone.

She loves to perform and being part of include provides her with a safe, friendly space to do this.

The use of inclusive communication, structure and positivity make include choir a place she can make sense of which in turn gives her confidence and comfort.

Include has really helped Michelle and myself to remember to use our Makaton and props to communicate with each other. It has given her such a great outlet to perform and feel successful.

The structure of sessions and inclusive communication has definitely improved her listening skills too.

Small charities like Include.org are the heart of the disabled community. They provide a positive, happy, inclusive place for people to be.

The work that Include does to promote rights, understanding and inclusion is something that is amazing to be a part of.

To see people’s smiles when they see the choir perform is so moving and making people with disabilities visible in such a positive and empowering way is just what society needs. “

Penny Sims
Communications and Partnerships Manager