Breaking Down Barriers | Include.org

Human rights are for everyone!

The Include Champions group worked with Folusho from Liberty – the human rights organisation – to make Easy Read information available to all.

The topic was Talking to The Police. We asked Folusho to tell us about this collaboration from her perspective.

What’s your mission?

I work for the Advice and Information Team at Liberty, a human rights organisation. The Advice and Information team’s mission is to help people understand their human rights. We do this by answering questions people send to us about their human rights through our helpline and written advice service. We also publish online articles about people’s rights, and deliver training to community groups.

The law is complex and tricky to understand so we try to break down topics to be as simple as possible.

We realised that we needed to make our information more accessible. Some people find it hard to read and understand things. Some people are still learning English.

We don’t want these people to be missed out. Human rights are for everyone!

https://www.libertyhumanrights.org.uk/advice_information/talking-to-the-police-easy-read/

Why did you reach out to Include and decide to work with The Champions?

We wanted to create a resource to explain that you don’t always have to speak to the police. This was a tricky topic to explain, because there are many ‘if this, then that’ scenarios in this area of law.

We had written some information, but we felt we had some gaps in our knowledge on accessible writing. We know that many people find it hard to read long blocks of text.

I researched Easy Read, and I learned that it’s a way to use pictures and short sentences to set out information. I wanted to give it a go, but have it checked by professionals to make sure the resource was as useful and accessible as possible.

I really wanted an Easy Read provider who worked with people who use Easy Read – and Include was perfect. The Champions group is made up of people who use Easy Read themselves. They give feedback on drafts and help shape the resource.

I wanted a true collaborative approach through co-production. I knew Include would be a great fit because of their amazing work around accessibility.

What did you discover from meeting The Champions and being part of the Easy Read process?

I met the Champions on Zoom, and we went through what I wrote. They told me their thoughts: what was easy to understand, and what needed rephrasing.

Their questions prompted me to deeply think about the law, which can be unclear sometimes.

The Champions helped me explain this ambiguity as simply as possible, which also made me refine my own understanding.

Claudia, Alix and Penny all taught me things too. I learned about repetition, and working memory, and I use in all my writing going forward.

How is the Easy Read being used? What hopes do you have for it’s impact?

Its only been out for a short time, but we hope to send this resource to many different groups. We didn’t just send it to disability focused groups – but any group that does community organising, across a range of different backgrounds and walks of life.

Line drawing of a policeman talking notes while asking name and address? text reads: The police can ask your name and address if they think you are behaving in an antisocial way. Second line drawing of two uniformed police talking to two members of the public. text reads: You do have to tell the police your name and address if they police believe you are acting in an antisocial way.

Easy Read is accessible to a wide range of people. As well as disabled people and non-English speakers, there are lots of people who benefit from this – people who are quickly scrolling on the tube, people who need to remember key information quickly.

I hope Easy Read makes people feel more confident knowing their rights. They might find it easier to remember since the pictures are there too.

I also hope it makes people think, “How can I make this information easier for more people to understand?” and be creative.

What is your personal take-way from this collaboration?

Image description: Folusho smiles at the camera. She has brown skin, shoulder length brown hair and glasses. She’s wearing a dark green turtleneck. End of image description.

Accessibility is so important and there is always more to learn. People’s brains work in different ways. Instead of looking at this as a difficulty, I now embrace it as a challenge.

I now say to myself, “Can I break this topic down even further? What exactly does this word mean, and can I use a simpler one? Would I remember this in a stressful situation?” If my answer is no, I go back to the drawing board and try to address these issues.

I have become more flexible and open to my ideas changing in light of new information. I’m glad Alix and her team were honest about what didn’t work, because hopefully that means more people find the resource useful!

For people who are considering using Easy Read – do it! The value of these sessions have gone far beyond the initial resource and I am very grateful to Include.

Find the Easy Read that came from this collaboration here: Talking to the police – Easy Read – Liberty (libertyhumanrights.org.uk)

A line drawing of a police officer taking notes while talking to a member of the public. Title Talking to the Police - a guide to your rights when talking to the police
Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

Why run for Include?

Here we go again!” Says Martin…


For me this is Run Reigate number 3 and once again I am delighted to be running for the amazing charity, Include. There is one small change though. Having run the 10km race for the last 2 years, this year I have decided to challenge myself to the half marathon distance. 

Photo of a team of 7 people standing side by side in a row at Run Reigate 2023 in Include.org tshirts standing in front of an Include.org stand or gazebo

‘Leveling up’ seemed like a good idea at the time, but as I write this the reality is hitting home that a half marathon is precisely 11.1km further than my usual 10km. Hardly an insignificant increase! 

Although the increase in distance is significant and will undoubtedly require some extra training, I don’t mind at all. In truth I think it’s a tiny sacrifice to support Include and the important work they do in our local community to ensure people with communication difficulties aren’t excluded from our society. 

Personal motivation

Family photo of Martin with his wife and two boys

For me this is a cause that feels quite personal. As the father of 2 boys, Josh and Ben, who struggle with communication difficulties (more from them in a minute) I see daily the issues they face.

Whether it’s being talked over by people who don’t want to wait for their responses or excluded altogether it’s something you never get used to seeing, and quite simply it’s not something I want for their future.

Here’s the thing. The fact that they can’t communicate in the traditional format as well as others doesn’t mean that what they’re thinking or want to say is any less valid, and the same is true for everyone with a communication difficulty. 

Photo of Martin with his sons Josh and Ben and the workds Martin's Story - Martin is running a half marathon for Include.org

Why run for Include again?

Most of us know that the more we understand others the better life gets, not just for them, but for all of us. And that’s why Include is such an important charity to me and why supporting it means so much. Through their work Include breaks down barriers that are created by communication difficulties and helps to ensure that more people feel included.

What Include also does is bring happiness to peoples lives.

Through initiatives such as their Choir and their Stroll and Sign walks they provide fantastic opportunities for all members of our community to get out, be active, socialise and just have fun.

As a sports coach who works exclusively with people with additional needs at PMActive and East Surrey Hawks Football Club I know how important this is. It gives purpose and a sense of belonging, but most importantly it provides a place where people can just be themselves. It’s sounds really simply but that, in a nutshell, is why I’m running for Include again this year.

I love how they help to ensure there is a place for everyone in our society. 

Living with a communication difficulty

I promised earlier to share more from Josh and Ben. When writing this blog I asked them how it felt to live with a communication difficulty and why inclusive organisations like Include are so important.  I think their explanations are much better than mine …

Because of my communication difficulty I find it hard talking to people and doing new things, even when I really want to. People like Include, the Hawks and PMActive help me learn new things and get better at sports and other important skills. Josh

Having a communication difficulty makes it hard to explain what I’m thinking and that means things like going to the shops can be hard. Places like Include and My football club the East Surrey Hawks help people with disabilities feel safe, included and happy. Ben

Just Giving

If you can support my run with a donation, no matter how big or small, it really would mean so much to Include. It’s a small charity so every penny counts! 

Donate to support Martin and see his training updates on Just Giving: Martin King is fundraising for Include.org (justgiving.com)

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

May 4th means a lot to us…

It’s hard to believe but May the Fourth is the Include Choir’s 8th Birthday.

Two years before Include.org registered as a charity, people with and without communication needs were already joining together once a week to sing, sign, include and bring the ‘joy and uplift’ that Include has become famous for.

The Include Choir sings and Makaton signs

And as you may know (if you are a person of a certain age or have children obsessed with lightsabers), we share our 4th May birthday with Star Wars Day.

So on behalf of all of us at Include.org ‘May the Fourth be with You’.

Groan. As my son would say.

Birthday cake with icing and star wars chocolates on it with the words "May the 4th be with you"

This salutation is an old joke (and a great excuse for a pre-Bank Holiday celebration) but this year, we’ve decided to reflect more deeply on our connection with Star Wars Day and what Star Wars can teach us all about inclusive communication.

More than 1 in 5 people in the UK will experience difficulties with speaking and understanding in their lifetime – and those people will need Inclusive Communication Partners to help them access services, have their needs met, make choices and live a full life.

Being an Inclusive Communication Partner means recognising, respecting and using all forms of communication that people need to understand and express themselves, not just the spoken or written word. It may mean sharing a smile with someone to reassure them you are listening, using Makaton signs for someone who finds it hard to understand speech, even though their hearing is fine. It could mean getting out a pencil and paper to draw what will happen next for someone who is anxious. It could be recognising what that movement and sound means for someone who doesn’t use words or it might mean taking your time so that someone can say what they need to say, even if speech is hard.

At some time in your life, you will have been an Inclusive Communication Partner, and with a little more awareness, we could all make much more of these skills to make the world better for those 1 in 5 with communication needs.

The Include Choir hatstand wearing a Happy Birthday hat next to an 8th Birthday baloon

OK – all well and good. But what does this familiar Include message have to do with Star Wars?

Well, without even straying from the original trilogy, we can find some outstanding examples of inclusive communication.

R2D2. So much going on in that electronic circuitry but no speech to communicate with others without the support of polylingual C3PO. C3P0s words explain R2’s feelings and thoughts to others – but we also still know how R2 feels about things when he does an excited little dance, emits a high-pitched, frightened squeak or droops with a low electronic sigh. We all respect and recognise his non-verbal communication too.

And what about Chewbacca? It’s not easy being a Wookie in a human world. Apart from the amount of time it takes for a blow dry, you are reliant on inclusive communication partner Han Solo to interpret your messages- although we can all tell a great deal about how Chewy is feeling from the pitch and inflection of his utterances (and I suspect we would all recognise and respect the body language of an angry Wookie).

We don’t only need to consider non-verbal communication either (though Ewoks and Jawas provide plenty more examples). Where would the Rebel Alliance have been if young Jedis were not capable of interpreting Yoda’s unique use of grammar to make sense of his wisdom. When we accept communication in all its forms, we can truly connect and grow together as Inclusive Communication Partners.

So to help us celebrate Include’s birthday on 4th May, we are asking you to think about how you could include people with communication needs by recognising, respecting and using all forms of communication – from symbols and pictures, to gestures and signs to body language and facial expression.

After all, it is only at the end of Empire Strikes Back, when we finally see Darth Vader’s face that we truly understand and connect with him.

staff and members do Star Wars look

May the Fourth be with you as an Inclusive Communication Partner, this Star Wars Day.

Our birthday hopes and wishes:

  1. A more inclusive world where all forms of communication are welcomed.
  2. People celebrate 8 years with us on Bank Holiday Monday 27th May at Teas on the Green in Brockham, see the choir, sing Happy Birthday to Include and buy tea and cake!
  3. Make a one-off birthday donation to Include.org or set up a regular / monthly donation on 4th of each month to give year-round cheer and help ensure no one is excluded due to communication disabilities or differences.
Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

Meet Beth

Everyone is welcome

When I talk to people about Include, I always say how much it has made a huge, positive impact in my life and improved my quality of life, given me a purpose and that it is the BEST charity I have ever come across where EVERYONE is included, everyone is welcome.

I want the world to know that there is no place anywhere that makes you feel so included, safe, comfortable, happy and purposeful as Include does.

How it started

I first found out about Include by research. I moved back down to Surrey from Coventry, and wanted to find out if there were any Makaton groups nearby and that’s how I came across Include. I messaged Alix and it all went from there.

I wanted to get involved because I was very lonely and I enjoy Makaton so much, and use it a lot personally.

At first, I was very anxious, only because I always am when facing new places, people and situations BUT this didn’t last long! Soon I was comfortable and felt ‘included’ and part of an amazing community and surrounded by lovely, genuine people.

When I first went to Include, I started off just joining in the choir every Wednesday evening in Redhill.

Growing in confidence

It wasn’t long before I wanted to volunteer, make a difference and help others.

I also started to attend some of the Stroll and Sign walks on Saturdays, going to performances, and helping to design the new ‘Star of the month’ certificate and another certificate.

I am also now part of the Champions Group which I really enjoy and feel we all make a difference by working on and designing Easy Reads for people and giving examples and explaining things like ‘reasonable adjustments’ etc. 

Since being part of Include, I have gained confidence, made friends and have something to really look forward to each week; helping others, having fun, being included and having a purpose.

Signs of Change

Although I already knew most Makaton signs before I came across include, I have gained more skills from The Include Choir and the Champions Group. These include improved speaking and listening skills, trusting people because I feel comfortable with the people I’m surrounded by and learnt a couple more skills on my computer.

The things I do with Include really help me day to day and help my support workers, family and others around me to understand and communicate with me, and others in a better or different ways.

When I struggle, I can become non-verbal, so for support workers and family to know basic Makaton signs is very important and helpful. I am now able to feel confident to teach them the important basic signs that are useful so that they can best support me. 

I think it is important for people in all sorts of jobs to know basic Makaton e.g. hospital staff, doctors, teachers in schools, dentists and other professionals that might come across people who may use a different form of communication like Makaton.

We are all different…

My favourite quote is ‘we are all different, but all equal’ and I feel everyone at Include is treated equally no matter what their needs are and this makes me very proud to be a part of such an amazing group.

The next step in my Include story is to do volunteering more and make more of a difference, help people more, improve more skills and gain more confidence.

I have a goal and that is to do a solo Makaton song at Christmas, I hope I can get enough confidence in time.

Discovering Include is the BEST thing that’s happened and I am very grateful for all that everyone does to make it such a lovely, enjoyable group.

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

Meet Sarah…

Sarah joined Include in 2017. In the time between then and now Sarah has moved home a few times, navigated Covid and had hospital stays. Throughout all the changes and challenges Sarah has remained loyal to Include.

She is very thoughtful and brings so much to the charity – we are delighted to share what she has to say about Include and her role:

How Include Makes Me Feel

” Being part of Include helps me to be myself.

And it makes me feel proud and relaxes me.

When I come to The Include Choir, I feel listened to. There are people with and without disabilities and we all help each other. Together we raise awareness of communication needs. I am proud when my Support Worker joins in with the singing and Makaton signing.

The volunteers are great too – they set up and make it all run smoothly – they are non-stop like Alix – our Director! Alix is so good.

Singing makes me happy – even if I can’t get to choir one week I will join-in on Zoom.

Getting The Community Involved

The Mayor of Reigate & Banstead knows us – he likes our charity. He helps us get more empowerment and open it up to more people. At the Banstead Christmas lights switch-on he wouldn’t let The Include Choir leave! He just felt we were popular with the crowds.

At concerts and performances people in the audience ask questions and I like explaining about Include and telling them how I feel about it. I also like when the people watching join-in. When we performed in The Belfry shopping centre there was a kid who was blind dancing along with us.

I am Choir Rep for our new Epsom Include Choir. I would say to anyone; “come along – there is cake, it is fun and everyone is helpful.”

Part of the Decision-Making

My favourite song is the MCA (Mental Capacity Act) song. Choir members help to write the songs. I helped to write one about Covid too. Our songs are our own versions – with the words expressing our feelings and what’s best for us from our point of view.

I use Zoom to be part of the Include.org Steering Group and the Include Champions Group. It is really, really good to be involved with Include – when I’m part of these meetings I feel more involved. I am part of the decision-making and that makes me feel included.”

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

How do you run an Inclusive Quiz?

Last month we ran our first ever in person fundraising quiz!

In lockdown we hosted one on Zoom but this time it was in a lovely setting – The Old Council Chamber in Reigate.

Being Include.org this was not a standard quiz. It was an inclusive one.

What helps to make a quiz inclusive you may ask? Well…here are a few things we did…

Role Model Hosting by Ciara

Although the Mayor of Reigate and Banstead was ‘host’ in that he invited us to use the Town Hall venue, he took a seat with one of the quiz teams on the night, and the quiz was presented by our Patron Ciara Lawrence.

Ciara recently spoke on our first ever Podcast and made it clear that as a person with a disability she is on a mission to ensure more of the world sees people like her for who they are and what they can do.

Well, we now know for sure…Ciara can brilliantly host a quiz evening, engaging a whole room of people with authority, style and warmth!

Something for everyone

People played in teams and we had a real mix of rounds and formats which all played to different people’s sensory strengths:

  1. Hearing – Name the song
  2. Signing – What does the Makaton gesture mean
  3. Taste and smell – Guess the crisp flavour
  4. Touch – Identify the household item hidden inside the sock
  5. Sight – Work out what the items are that we photographed very close up / micro
  6. General Knowledge – Answer audio / video questions from supporters like TV’s Dan Walker, Marcus Ramtohul (also in our first Podcast) DJ SUAT and Cllr Jonathan Essex
  7. TV knowledge – Easy Read questions from The Include Champions

We’re delighted to share the TV Quiz questions as the next FREE Easy Read resource in our series. Download Here (audio version to follow very soon):

Inclusion Wins!

There is always more to be done in terms of inclusion. But we did our best with limited resources and we were delighted that the team that won The Include Quiz was a mixed group of people – some of whom only met each other that night. Meeting new people is not always easy for people with communication needs, so that in itself was a big win.

This team, called “The Team That Shall Not Be Named”, included volunteers, choir members and parents. There were people with autism and visual impairment, playing alongside people without additional needs. There were volunteers who have literally just joined Include working alongside members who have been around for years.

We know that there was a team with regular quiz winners in it who were defeated on this night. But this was not a regular quiz!

So that’s a win in our book.

Want to make your own event inclusive?

If you want to host an inclusive event why not speak to The Include Champions Group to get their ideas and tips based on their lived experience of being a person with a communication need and/or disability? Enquiries to info@include.org

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

There is no magic wand!

I first found out about The Include Choir by word of mouth, from my friend Hannah. She recommended it to me because she knows I enjoy fun things and singing takes your mind off your worries.

When I came along, I found that everyone is very friendly, this group does not separate out one type of person from another.

If people have autism or mental health needs etc they are accepted. Everyone is accepted for who they are.

I decided to Run Reigate to represent Include.org and help raise money for the charity and its work. It is the first time I have done a race to raise money.

My journey to doing this half marathon was a long one! It has taken me a few years to get here.

There is no magic wand – I had to put the graft in!

I was very good at running when I was in college, but I stopped doing it and wasn’t even able to do a 5K at first. What got me back into running was seeing my friends Tina and Andrew, who I met at the Prospero Theatre group, doing so much running. Tina did the London Marathon and Andrew is training to do an Ultra marathon which is 50miles and also a 100mile race – they have inspired me and helped to coach me.

Once I could do a 5K comfortably, I gradually built up from there to a 6K and 7K and so on. Over the last 2 or 3 years I have got better and better at it. It goes to show that if your body is healthy enough you can do it.

I will never be like Mo Farah winning gold – but I still love it and for me it’s more about the journey than getting a gold medal.

Run Reigate was actually my 3rd half marathon! I did Denbies and Woldingham, and for those I had never run that far before (and not with so many hills), but once I got to 12 miles I just pushed myself that extra bit to get to the end.

I feel I haven’t achieved a lot since my college days – but I was ready to take on my next challenge and fundraising for a great cause like Include.org has made me feel like I have achieved a lot. It is a super feeling to help the choir – not just running for myself. 

The day of Run Reigate didn’t go completely smoothly for me! I was going to get a lift there but the person who offered forgot and so I was then running late and had to drive myself there. I was still in Redhill at 9am and my race started at 9.15am in Reigate! When I finally arrived, I had to jump over the railings to get to the start line on time! I had my backpack on too – but it had my water in it and I knew I would be glad to have that.

There was a good vibe at Run Reigate. I enjoyed seeing everyone – some people also running spoke to me. They reassured me when I had to stop for a comfort break that I wasn’t the only one to need to do that!

It’s not just the running but the people, the stalls, the music – that’s the reward after the run!

The weather was also good and I enjoyed exploring parts of the countryside of Reigate and Horley that I wouldn’t normally see.

And finally, it was great to see the finish line ahead! 

The Include Run Reigate fundraiser is still going. Please donate here: Team fundraiser – Run Reigate Include.org Team (peoplesfundraising.com)

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

The Run Reigate Journey

On 27 July some of The Include Choir went along to the Run Reigate Run Club in Priory Park – led by Jas Dhanda from Reigate Priory Athletic Club.

While the runners were put through their paces, we sang and signed some running themed songs like Don’t Stop me Now.

Seeing the runners prepare mentally as well as physically took me back to my 2019 Run Reigate journey. It was before the world-changing events of Covid19, but after some fairly significant events in my own life.

It was the first time I had run more than a few kilometres since breaking my back and neck.

In 2010 I fractured my spine in 7 places, and broke my shoulder, hip and hand when somebody opened their car door into the road as I was approaching on my motorbike.

Thanks to a good quality bike helmet I was incredibly lucky to avoid a brain injury.

When I think how close I came to experiencing the sorts of understanding or speaking difficulties that Include.org tries to tackle, I get a shiver down my (now mended) spine.

I spent 3 months in a rigid brace and it was another 6 months before I could return to work.

If someone had told me then that I would complete Run Reigate’s 10k run, I would have thought they were joking!

I felt so lucky to be able to take part.

At Parallel London in 2017 one of our members David not only performed with The Include Choir, singing and playing the drum – he also got the team’s fastest time at the event’s sensory 1k.

David has a visual impairment – but this didn’t affect his speed! This event, held at the Olympic Park in London, was a real memory maker for David and many of the rest of us.

Memories made for all the right reasons – feeling involved and able to shine.

We’re going to talk more with the Run Reigate organisers to look into the idea of a fully accessible sensory race in the future.

It’s not that everyone wants to aim for the longest distance, or the fastest time that makes events like Run Reigate or Parallel London truly bonding for the community. It’s creating a space for all the personal magic moments that happen along the way.

Sometimes these moments begin months before the day itself…

…The encouraging chat with a friend to enter, the training partner who meets for a morning run in the rain, facing a personal fear or anxiety, overcoming an injury, generous donations to a cause you care about, a way of remembering or honouring someone dear, being boosted by a cheer from the crowds, being offered a jelly baby by a random resident of one of the streets.

On the evening of the Run Reigate Run Club, a magic moment for me was when choir members Hannah and Lynette led the choir, while I turned around to include the runners in “Don’t Stop Me Now”.

In turn, the runners themselves joined in with enthusiasm, even after their gruelling training session!

On Sunday 18th September Include.org will help to create some magic moments at Run Reigate.

We have a stall in the event village, our inclusive choir will perform and we’ll raise awareness of inclusivity. Thank you to everyone who is already onboard.

If you are local, but not involved yet, could you help or just come and support us? Please let us know.

We can offer reduced fee places to runners who would like to raise money for our charity, and we’re hugely grateful for all fundraising efforts.

Find out more here .

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

How has life changed for people with learning disabilities?

This month, between the Platinum Jubilee and Learning Disability Week 2022, our Champions Group has been reflecting on how life has changed for people with learning disabilities during the Queen’s reign.

We also talked about what was going on for the royal family in each decade, memorable moments like when people walked on the moon – and chose a favourite song from each decade (like Don’t Stop Me Now from the 1970s). So, we hope this Easy Read will inspire you in many ways.

Here is the link to our audio version https://soundcloud.com/user-683393051-385203358/platinum-jubilee-special?utm_source=clipboard&utm_medium=text&utm_campaign=social_sharing

But it might shock you too.

It’s hard to believe that in the 1950s, when Queen Elizabeth II first came to the throne it was common for children with learning disabilities to leave their families to live in ‘long-stay hospitals’ and attending school was not an option.

The Include Champions believe that access to education for all is important. Philip said that it was down to going to school that he has been able to get a job. David said he learned to speak French at college and Hannah cooks her own meals having learned in education. Three great examples.

People Making Change Happen

We celebrated some of the people who really helped to turn the tide and change the way society looks at disability.

Some of the first research into what is actually best for children with Learning Disabilities didn’t happen until 1950s! Joss rightly found this surprising “Are you joking?! That was the first piece of research ever to have been done?!”

In 1958 Professor Jack Tizard published his findings – the headline – children with Learning Disabilities should not be taken away from their families and would live better lives in the community.  

Then in 1964, the Jean Vanier invited two men with learning disabilities to live in his home rather than in a hospital – the first L’Arche Community home was set up in France. This paved the way for many more people with learning disabilities to return to the heart of their communities. Of Jean Vanier, Joss said “What a great bloke!”

Everyone Can Make A Change

We also talked about how in day-to-day life it’s sadly not just the people who do good things that we remember – we also often remember bad things that people say to us. The Champions Group started talking about how important it is to try to use words that are kind and respectful when talking about people, especially in the context of disability.

All that matters is that we are here and we are thinking about each other and we care.

Hannah summed the conversation up so well… “All people have different abilities anyway. We are all different. It doesn’t matter what we are, it doesn’t have to be perfect or anything, all that matters is that we are here and we are thinking about each other and we care and, plus we need to think about this really carefully.”

And that my friends, is inspiration for a future Easy Read about why words matter.

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

Not just a Choir

Include Choir member Joss shares his thoughts…

“I have been part of other choirs, and they tried and were nice – but it wasn’t like coming to Include. They weren’t doing anything particularly offensive, Include is just better!

Include people say “Hello” and treat me like my best friends treat me. We can be complete strangers – but when I’m around them, I feel I can walk.

I only get that feeling from my very, very, very close, and I mean very close friends.

Elsewhere, especially in the outside world, it’s not very like that. I just want to be with the Include guys every single day because they are accepting of me. Include are family to me.

Include is not just a choir – it’s not just saying right we are choir, join us, tick in the box and that’s it.

Include Choir and Alix decide day by day we’re actively going to include every single one of these people who are less included, and take the people who are totally on the margins of society and say look come and sing with us, you are not different in this room.

The D Word

I don’t look at myself as disabled.

Places like Include and people like Alix are just wonderful, they don’t see your disability. The Include Choir focus on the fact you can sing!

If you ask Alix about who Joss is she will say something like, “He is pretty good on a drum, he can talk the hind legs off a donkey, but I completely ignore the fact that he is disabled.”

I think about 90% of society you ask might say, “this kid is disabled” and only about 3% go “Actually he is a really nice guy,” and they don’t look at me as disabled.

Some people think that to understand me they have to put this costume or label on me, “This guy is disabled.” And it’s not until you throw it off yourself – you throw it off your body and you say look I am able – they have a moment when they just stop and they go, “Ah – he is a nice guy!” And that moment of realisation is the most beautiful thing, and I can see it happen all the time. From that day on they will never call me disabled again – which is really beautiful.

Teaching the World…

That fact that The Include Choir performs in public places is really something big.

By doing that we’re actively teaching the world that we are all the same, we are just made from slightly different clay – we are not really that different to each other – we all have faces, we all live on the same planet etc.

People at the college I go to know that just because you’re disabled it, doesn’t mean you can’t do X, Y and Z or you can’t live your life. But my college is in the middle of nowhere, so no one really knows about us and what we can do.

Include takes that one step further because it puts people like me in front of able-bodied people and goes, “Look this is what Joss can do,” and they go “Wow, he can do that, he is in a wheelchair.” And they put the two together and it changes their lives because they realise that, even though I’m ‘disabled’ I can do a whole load of things that they can do.

On My Terms

Someone at my college recently asked me “What do you think about the term disabled?”  I thought for a very long time and eventually I said, “It’s not me that gives me the term disabled, it’s society”. This resulted in an hour-long conversation about the term disability not being helpful. I would wipe that term out.

There are not many words that genuinely offend me, any swear word genuinely won’t offend me and won’t hurt me, but the term disabled does. It cuts me like a knife every time I hear it and it f***ing devastates me because it’s like, “stop putting me down, and raise me up”! 

So, I have stopped calling myself disabled and there are people where I live that might say differently-abled and I prefer that – it doesn’t chop off my legs. It says that your legs move in a slightly different way and let’s be open and accepting of that.

Bigger Than Acceptance

Include has really helped me because I have enormous amounts of frustration and incredible bouts of anger that seem to come out of nowhere because I have to have carers all of the time. At college I have about three carers.

At Include I have only really got one, Steven and that’s it. When Steven sits with the choir and joins in it feels like family and it feels like acceptance.

It’s almost bigger than acceptance – Include Choir feels rather more than a single person accepting my disability, it’s like getting a whole room of people to accept my disability all at once, all over the world and yet it’s in an hour-long choir session with an interval!

Sing it from the rooftops

People like me don’t have many chances to walk – but singing is like walking. I am very grateful.

Include songs are f***ing brilliant, genuine from the heart with powerful messages. “In My World” is so beautiful it really is, and every time I hear it, it elicits more of a response from me, I don’t know why and I don’t think I will ever know why! It’s a statement for mankind.

I also like “Kind Communication” – because it’s explaining what I have been talking about – I think people need to hear these songs in places other than YouTube. I think they should be on Spotify.

Eventually, I hope that there will be an Include Choir in every country because its attitude is so welcoming. If there were other Include Choirs it would be a better place, more peaceful with less segregation.

I don’t like segregation or war; I am a peaceful man. We need an Include Choir everywhere we can get one because it brings peace to the world.”

The good news Joss, is that this summer we will be starting up another Include Choir…watch this space.

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead