Easy Read | Include.org

Human rights are for everyone!

The Include Champions group worked with Folusho from Liberty – the human rights organisation – to make Easy Read information available to all.

The topic was Talking to The Police. We asked Folusho to tell us about this collaboration from her perspective.

What’s your mission?

I work for the Advice and Information Team at Liberty, a human rights organisation. The Advice and Information team’s mission is to help people understand their human rights. We do this by answering questions people send to us about their human rights through our helpline and written advice service. We also publish online articles about people’s rights, and deliver training to community groups.

The law is complex and tricky to understand so we try to break down topics to be as simple as possible.

We realised that we needed to make our information more accessible. Some people find it hard to read and understand things. Some people are still learning English.

We don’t want these people to be missed out. Human rights are for everyone!

https://www.libertyhumanrights.org.uk/advice_information/talking-to-the-police-easy-read/

Why did you reach out to Include and decide to work with The Champions?

We wanted to create a resource to explain that you don’t always have to speak to the police. This was a tricky topic to explain, because there are many ‘if this, then that’ scenarios in this area of law.

We had written some information, but we felt we had some gaps in our knowledge on accessible writing. We know that many people find it hard to read long blocks of text.

I researched Easy Read, and I learned that it’s a way to use pictures and short sentences to set out information. I wanted to give it a go, but have it checked by professionals to make sure the resource was as useful and accessible as possible.

I really wanted an Easy Read provider who worked with people who use Easy Read – and Include was perfect. The Champions group is made up of people who use Easy Read themselves. They give feedback on drafts and help shape the resource.

I wanted a true collaborative approach through co-production. I knew Include would be a great fit because of their amazing work around accessibility.

What did you discover from meeting The Champions and being part of the Easy Read process?

I met the Champions on Zoom, and we went through what I wrote. They told me their thoughts: what was easy to understand, and what needed rephrasing.

Their questions prompted me to deeply think about the law, which can be unclear sometimes.

The Champions helped me explain this ambiguity as simply as possible, which also made me refine my own understanding.

Claudia, Alix and Penny all taught me things too. I learned about repetition, and working memory, and I use in all my writing going forward.

How is the Easy Read being used? What hopes do you have for it’s impact?

Its only been out for a short time, but we hope to send this resource to many different groups. We didn’t just send it to disability focused groups – but any group that does community organising, across a range of different backgrounds and walks of life.

Line drawing of a policeman talking notes while asking name and address? text reads: The police can ask your name and address if they think you are behaving in an antisocial way. Second line drawing of two uniformed police talking to two members of the public. text reads: You do have to tell the police your name and address if they police believe you are acting in an antisocial way.

Easy Read is accessible to a wide range of people. As well as disabled people and non-English speakers, there are lots of people who benefit from this – people who are quickly scrolling on the tube, people who need to remember key information quickly.

I hope Easy Read makes people feel more confident knowing their rights. They might find it easier to remember since the pictures are there too.

I also hope it makes people think, “How can I make this information easier for more people to understand?” and be creative.

What is your personal take-way from this collaboration?

Image description: Folusho smiles at the camera. She has brown skin, shoulder length brown hair and glasses. She’s wearing a dark green turtleneck. End of image description.

Accessibility is so important and there is always more to learn. People’s brains work in different ways. Instead of looking at this as a difficulty, I now embrace it as a challenge.

I now say to myself, “Can I break this topic down even further? What exactly does this word mean, and can I use a simpler one? Would I remember this in a stressful situation?” If my answer is no, I go back to the drawing board and try to address these issues.

I have become more flexible and open to my ideas changing in light of new information. I’m glad Alix and her team were honest about what didn’t work, because hopefully that means more people find the resource useful!

For people who are considering using Easy Read – do it! The value of these sessions have gone far beyond the initial resource and I am very grateful to Include.

Find the Easy Read that came from this collaboration here: Talking to the police – Easy Read – Liberty (libertyhumanrights.org.uk)

A line drawing of a police officer taking notes while talking to a member of the public. Title Talking to the Police - a guide to your rights when talking to the police
Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

Stress Awareness Month

Stressful Statistics

April is stress awareness month. Many people take this to mean work-related stress – and that is an issue. 1.8 million working people suffering from a work-related illness, of which 875,000 workers suffer work-related stress, depression or anxiety.

Source: Britain 2022/23 https://www.hse.gov.uk/statistics/overview.htm

Group of professionals including people working in the Social Care sector

The CQC’s state of care report highlights that Social Care Workers are stretched and stressed by lack of resources and high levels of demand.

Meanwhile, among unpaid carers, who are estimated by the UN to meet 75 – 90% of care needs, carer burn out is also real. More than three quarters of all carers (79%) feel stressed or anxious, half (49%) feel depressed, and half (50%) feel lonely.

Source: The State of Caring Survey 2023

Communication skills and stress can be related. Sometimes when stressed, our ability to process or produce spoken language is impaired. And if it isn’t easy to communicate or if we are not understood, it is stressful. All of Include’s projects and training aim to build communication bridges, so that this stress is reduced for everyone involved.

Stroll and Sign project participants smile and wave at the camera

We welcome carers and support workers to our projects and they tell us that things like our Stroll and Sign wellbeing walks help them to feel less isolated and less stressed as a carer.

Being in nature with a supportive group boosts everyone’s mental wellbeing.

You can watch our video about How our Stroll and Sign project helps people. Why not come and join us?

Honest Insights

We asked a friend who is a full-time carer to share his experiences of stress and ways to help manage it. Here is what he said:

“I have always used the word stressed and stress for as long as I can remember, I’ve always felt anxiety socially, About everything really, being late, thinking that I need to be doing something better with my life or thinking that something bad might happen. In December 2020 something really bad did happen, my son had a brain tumour removed and then suffered from severe complications that meant that he needed me to be with him all day every day to care and help him to rehabilitate.

So, I learnt that what I was worried about before paled into insignificance compared to this new life. The stress of keeping someone alive 24/7, the stress of making sure they get the right calories, the right water intake, that they don’t have a seizure, they don’t hurt themselves, to try and get them out into social situations when they don’t want to get out of the car, the dread of impending scans and discussions with Drs to know if the tumour comes back, and a million more tiny stress points in the day while trying to operate as a normal family with my wife and daughter as well.

How do I deal with stress? Well, it is there and it won’t go away and most of the time I can handle it with the occasional ‘dummy spit’ where I have to take a few minutes to breathe. I ensure that I exercise at least 3 times a week, playing Football with a team helps as that is a great place to talk to others who are sometimes going through tough times themselves, but also to talk about Football and tactics that our crumbling bodies probably can’t execute come match day. I also go for a walk around the block on evenings where I need to get my thoughts straight.

My son is currently at a Neuro rehab centre in Surrey with a packed schedule of therapy and School sessions, so I am flat out getting him ready, getting tosessions on time, feeding him etc etc, after our first week we reviewed everything with the team here, and one of the key goals of this placement is for me to look after myself. Easier said than done, but very important because if I suffer then everyone suffers. It’s hard to let go, but I’m doing it step by step, and my son is responding well to me taking a step back at times. I’m also finding it really useful to chat to others who are in a similar situation, there is no agenda, we are all in tough situations and can just talk straight to each other. So, another way to manage stress is to speak to others, understand where you can step-back and that you may not be that vital all the time – the World will still turn without you.

It’s difficult to manage stress. Try to find time away from your day to day to do something you enjoy, chat to people wherever you are, walk round the block, maybe get some professional help if you feel ready, listen to your close ones if they say they are worried about you, there’s always some way to solve a part of the problems you are facing.”

Other things that can help

Sticky notes on a board with handwritten comments about how people relax when stressed

We asked some of our Include Choir members, support workers and volunteers to share how they manage their stress. Here are some examples of what they said:

“I relax by gardening, playing guitar and reading.”

“I like to talk to someone, listen to music or watch a film to cheer me up”

“Headspace and yoga. Listen to music. Exercise.”

“Music”

“Turn off notifications on my phone!”

“Listen to music”

“Go for a drive”

“Deep breathing exercises”

“Take a long bath”

Easy Reads

Our Champions Group (people with lived experience of communication needs) has produced two relevant and helpful Easy Read resources – one about mental wellbeing and the other about physical wellbeing.

You can download them for free here:

Healthy Mind download LINK

Healthy Body download LINK

There are audio versions on SoundCloud too:

Healthy Mind

Healthy Body

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

How helping others helps you…

“Everybody can be great because

everybody can serve.”

Martin Luther King, Jr.

Why Do People Help Charities?

Why do we help anyone?

What inspires us to help will vary, but there is a common side-effect of helping; you get a boost and feel good yourself!

Two of our Include Champions, Beth and Sarah told us how being a Supported Volunteer (a volunteer with lived experience of communication needs), makes a difference:

Two seated Include Choir members look at each other at an outdoor event

Beth says; “Volunteering makes me feel like I have a purpose. It boosts my wellbeing in many ways because it helps me to help others and that is a good feeling that helps not only my mental health but emotional too.” 

Two seated Include Choir members communicate using Makaton at a rehearsal

Sarah says; “When volunteering in The Include Choir it makes me feel helpful and I’m loving working as a team there. It especially helps me forget everything and volunteering cheers me and builds confidence…





…Also it helps me gain confidence to volunteer with other services too. Just by volunteering I forget what happened and I look forward to coming to choir – I am always the first person to respond to events.”

The Champions have produced a FREE Easy Read on this subject:

How helping others improves wellbeing

Audio version on SoundCloud

How Can People Help?

We’re so grateful to all of the people who help Include. As a small charity the kindness of others is what enables us to keep going. We have a number of other amazing people who volunteer with us.

You do not even need to be based in Surrey to get involved!

Neta volunteers her skills remotely with Include, helping to edit some of our videos. She says; “Helping Include adds meaning and purpose to my life, fostering a sense of connection and fulfilment. By lending a hand and making a positive impact on someone else’s life, I also uplift my own spirits.”

Charlotte comes in person to weekly Include Choir sessions, she says;

Choir volunteer joins in with singing and Makaton signing - hands are raised

“Volunteering at Include is the highlight of my week. I feel connected and part of a lovely special group. Singing in a safe environment whilst helping others find their personal joy is sooooo uplifting and rewarding. It truly does make me very happy.”

There are many volunteering opportunities, so whether you would like to attend an Include project like the choirs in Redhill or Epsom, help on a wellbeing walk, or edit videos etc, please just let us know info@include.org

Members of the small part time staff team at Include also gain so much from working for the charity. Susi explains; ” When I read the advert for an Assistant Choir Director for Include, it sounded like the dream job for me – to be involved in music and fun and learning and making friends and sharing important messages. I’m so proud to be part of Include and when I attend rehearsals or performances the feeling of joy is palpable. it’s also incredibly inspiring to see the friendships that are made by others.”

Susi stands alongside members of The Include Choir all wearing their choir tshirts and performing outside

How Can Companies help?

In 2023 there were four stand-out organisations that helped us.

BOOSTFit, PowerTutors, WB Simpson & Sons, and Morr & Co.

Below we share some of the ways companies can, and do help.

Gifting Spaces

As a small charity we work from home and from community buildings rented for a few hours to run our projects. But sometimes we need a space to get together for team planning days and training. Local solicitors Morr & Co kindly allowed us to use the Board Room space in their office in Redhill on several occasions. Thank you.

Mike from Morr & Co says;  “We have really enjoyed getting to know the team at Include over the last few years. Supporting the communities in which our team live and work has always been part of our firm’s core values,  and providing a space for the Include team to get together or provide training is a really simple way for us to help out”.

Members of the Morr & Co staff team attended Include’s Makaton training (at a discounted price) because of the partnership.

Funding Specific Resources

PowerTutors kindly offered to fund a printed brochure for Include. Naz says; “At Powertutors, we recognise the invaluable contributions of Include in our local community. Their dedication to ensuring no individual faces exclusion due to communication disabilities is commendable. With innovative and thoughtful approaches, Include fosters an environment of inclusivity, empowering everyone to embrace and express their unique voices with confidence. We are proud to support their mission and witness the positive impact it has on enriching lives.”

Sponsored Fundraising

Close up of the sleeves of two people's cycling tops that have the Include.org logo on them

Billy, Max and Kirk from tiling company WB Simpson & Sons’ Head Office in Redhill participated in Ride London on 28 May 2023 to raise money for Include.org.

They raised nearly £1200 and even wore Include branded tops for the ride. Thank you.

Sharing Our Story

Our CEO and one of our choir members have links with a local fitness company BOOSTFit. The company is inclusive, community minded and keen to support charities. As they say on their Instagram bio they offer “A fun workout to heart-pumping popular music leaving you physically & mentally BOOSTed.” Our values were well aligned and they kindly said that they would help with promoting our Big Give fundraiser which raised over £38,000 in one week!

Cassie from BOOSTFit said; “Using our platform to help support Include.org and their Big Give campaign meant we could not only raise awareness and funds, but it opened up conversations between our community too. Our team of instructors spread across the UK and overseas used their own communities to share the story too. It was great to bring together a business and charity and collaborate for such a great cause.”

Follow and share our social media content:

social media details
Facebook is @include.org
X (Twitter) is @includetweets
YouTube is @inlcudetube
Instagram is @include_org
LinkedIn is @include-org
website is www.include.org

Corporate Volunteering and other help

The funding landscape for charities is very, very challenging now and we’re grateful for the continued interest and support of local businesses in Surrey. If you work for a community-minded organisation please do keep us in mind.

Could you help by:

  1. volunteering at some of our projects?
  2. sharing some of our social media content?
  3. sharing your professional expertise to help us improve?
  4. getting your organisation to consider us for payroll giving?
  5. mentoring one of our Supported Volunteers (people with disabilities)
  6. gathering a team of people from your organisation help to raise vital funds for the charity by taking part in a fundraising event for us – like Run Reigate?
  7. offering a storage space at your premises…we’d love to be offered a place in Redhill where we can store and easily access some of The Include Choir’s things.

To offer help or to ask any questions please email info@include.org

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

Breaking Down Barriers – there’s an app for that!

When healthcare information is accessible and understandable for all, it can literally save lives.

Alix Lewer, Founder and CEO of Include and The Include Champions helped to develop an accessible version of the CardMedic app…a tool that breaks down barriers to good communication in healthcare.

It’s a partnership that we are really honoured to be part of. We wanted to know a bit more about what the people at CardMedic thought, so we asked!


Rachael Grimaldi – Co-Founder and CEO of CardMedic

What is CardMedic’s mission? 

At the point of care, the inability to communicate is the largest single contributor to health inequalities, and patients with additional communication needs make up nearly 50% of the population.

CardMedic’s mission is to break down communication barriers between healthcare staff and patients by making healthcare information accessible and understandable for all.  

We’re committed to inclusive communication and believe in acknowledging and accommodating everybody, regardless of their communication needs. Our aim is to provide intuitive and cost-effective technology that empowers clinicians and patients to communicate quickly and efficiently across any barrier, enabling more effective delivery of care, reducing health inequalities, and improving patient outcomes.  

Why did CardMedic want to work with Include?  

We were really keen to work with Include because we share their mission to break down barriers and create a more inclusive world. At CardMedic, we recognise that accessible information is vital for ensuring equitable care delivery, so we couldn’t imagine a better partner.

Alix Lewer’s expertise as a Speech and Language Therapist, as well as Founder and CEO of Include, made it a no-brainer. She and her amazing team have been invaluable in helping us improve communication in healthcare and increase our understanding of the challenges people can face.  

Together, we’ve been able to develop innovative solutions and resources that empower us to think differently about how we communicate. Particularly in a healthcare setting, we’ve learnt how to effectively communicate with patients with diverse communication needs and improve health outcomes for underserved populations.

Our shared vision of inclusivity and accessibility made us confident that partnering with Include would help us work towards a more equitable healthcare system for all. 

How did the partnership help your project? 

Alix is incredibly knowledgeable in the accessible information space and about the Mental Capacity Act (2005). She understands that inclusive communication means recognising and respecting all forms of communication–not just the written and spoken word.

Drawing on her knowledge of inclusive practice in health and social care, having worked as a Speech and Language Therapist in the NHS, Alix contributed to the initial development of an accessible version of the CardMedic app. Include’s lived experience Champions Group also continues to work with us to review our content regularly and provide feedback about accessibility.  

Our partnership with Include has helped us refine our content to ensure that it’s as accessible as possible to individuals with diverse needs, including those with learning differences, visual and hearing impairments, and language barriers.

Alix’s expertise has helped us convert our library of scripts covering a vast array of clinical specialties and sub-specialties into Easy Read, at a reading age of 6 or under.  This essentially means it is accessible to many more people than traditional information would be, both children and adults.

What would you say to others thinking of partnering with Include? 

For anyone working in the accessibility, language, and communication space, they would be remiss not to reach out to Include! Include promotes inclusion and wellbeing, empowers people with additional communication needs, and ensures that they have equal access to services, facilities, and opportunities. They do a fantastic job of collaborating with businesses, educational institutions, and other organisations to help raise awareness of accessibility and provide practical solutions for inclusivity.  

Include also offers brilliant training and consultancy services to help organisations improve their practices by making them more accessible. By partnering with Include, you’ll gain valuable insights, guidance, and resources to enable you to create a more inclusive environment.

The team are so friendly, and their expertise will help you address communication barriers and send out a powerful message about your commitment to inclusivity. All in all, we’d highly recommend partnering with Include! 

Get in touch with Include, please email : info@include.org

More information : https://www.cardmedic.com/

(She won’t tell you herself, but while we are here and talking about healthcare…Alix won a Royal College of Speech & Language Therapists’ Giving Voice Award for voluntary work with The Mental Capacity Act Clinical Excellence Network – Raising Awareness of Supported Decision Making at End of Life.)

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

Reasonable Adjustments

At Include, we work hard to ensure that communication needs or disabilities are not a barrier to access or inclusion in our projects.

We proactively make reasonable adjustments – and we keep listening and checking what else we can do to ensure people have equal access.

We admit that we can always improve in this area.

Probably most services, charities and businesses can do more to enable genuine equality of access. We don’t just mean how easy a building is to access if you have a mobility issue. But the whole experience – how people interact and communicate, how we experience an environment or service from a sensory point of view etc.

A graphic representation of a ramp - explaining the things that support Communication access. 1 Raise Awareness of Communication Needs. 2 Increase Understanding of Inclusive Communication 3 Build confidence and self-advocacy in people with Communication needs 4 Train people to be inclusive communication partners.

Focussing on improvements that help individuals and getting it right tends to enhance things for everyone, with or without an additional need.

As well as coproducing a FREE Easy Read on Reasonable Adjustments, our lived experience consultancy team The Include Champions are reviewing some of the things we do within Include and helping to fine-tune them.

By sharing this FREE Easy Read we hope more people with communication needs and disabilities will have better experiences when they go to work, interact with services or are customers in shops and restaurants.

Email

Basic graphic of an envelope on a computer screen to represent email

We recently talked about our emails.

We already use accessible fonts and Easy Read format – with a picture to reinforce each point.

But our members suggested that we use shorter and simpler links, and make the writing bigger.

Website

Image of a young man pointing at the colour red on a board which has two colours on it - red and blue

We’re becoming even more aware of the importance of colour contrast in terms of how easy, or not, it is to read and have started to use a new resource to check this: https://colourcontrast.cc 

Furthermore, we are going to be working harder to make best use of alternative (Alt) Text to describe the images we use on our website and elsewhere. Thanks to Colin Grist from Few and Far for his free talk and tips on website accessibility.

A screen shot of a calendar of things Include.org is doing on 15th 18th and 19th of July. Which are Stroll and Sign on 15th at 11am, Epsom Include Choir on 18th at 6pm and Redhill Include Choir on 19th at 7.30pm

Our website provides project information in a calendar format so members can check at any time what projects are running, where and when. One of our Champions, Hannah is encouraging everyone to use it – it means you don’t have to wait for the emails!

Visuals

A photo of the list of songs that Include Choir members have put together on a board. Includes songs Any Dream Will Do, Three Little Birds, This is M, Sweet Caroline, I have a Dream, Fly a Kite, Don't Worry Be Happy, Shotgun and Wonderful World

Consultation and co-production are central to the way we do things, so naturally Include Choir members help to write lyrics and choose which songs we learn to sing and sign.

Visual and tactile prompts help people with communication needs. So, we make a physical list of song names with visuals using Velcro. Members choose from a whole table full of song options to decide which songs we perform at certain events.

Recently Hannah, one of our members has suggested that our song polls on Facebook also have an image to represent each song option to enhance understanding.

We also have a photo board at the choir sessions – this is for people to add themselves (sign in – without needing a pen) as they arrive and so everyone can see from the photos who is there that day.

Recently we have had feedback to say that we should make the signing in board a bit more organised so that volunteers are shown in a board along with an idea of their role that day.

Objects

A montage of three photos showing Objects of Reference. 1 photo shows  Hattie the Hat stand loaded with props like two large foam hands, a round emoji cushion with a smile and hearts as eyes. A photo of a choir member having fun playing a blow-up guitar. Choir Director standing next to the hat stand doing thumbs up and the back of someone in the choir also doing thumbs up - the Makaton sign for good.

Hattie the hat stand is never far from our Choir Directors! There is a very good reason for that. We have Hattie because it carries all our props or objects of reference. We use physical props because some people find objects helpful to enhance understanding – because communication is more than signs or words.

Champion Beth feels the props are good as we have some visually impaired members – props can enhance their experience too. Member Philip loves the hat stand and Josh reminds us to include Hattie in some of our photos!

Location

A photo of 5 people walking down a path in the countryside chatting and using hand gestures while talking

Many of the adjustments we make are not to do with literal access ramps (often the first thing that comes to mind when people consider disability access). That said, when we run projects like our Stroll and Sign wellbeing walks, or perform as a choir in new locations we always risk assess beforehand.

An important element of that is assessing accessibility and working out what adjustments we may need to make. For example, regarding lighting in a car park, suitability for wheelchair users or access to a stage. And if we need to, we do feedback to venues about any issues to try to improve things.

If you would like some guidance on inclusive communication, or access to a lived experience focus group to look at this topic for your organisation please get in touch: info@include.org

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

Vote like a Champion!

Ahead of the local elections on Thursday 4th May, The Include Champions Group has created a FREE Easy Read guide to voting for people with communication difficulties.

Here is the audio to listen to the guide: https://soundcloud.com/include-org/voting-like-a-champion?

The My Vote, My Voice group have accessible information about voting on their website too.

Our Champions have been sharing their experiences:

Hannah’s experience

During Covid times, Hannah, one of our Champions voted by post. But gradually she has decided to go to a Polling Station.

She knows she can ask for help from the people working there but Hannah has become more confident over time about being independent when voting in person.

First, she talks about it with her family and thinks really carefully about who she wants to vote for. She now votes independently.

Planning Ahead

The Include Champions pointed out that if you live in supported accommodation, or a block of flats you might not get someone knocking on your door or putting a flyer through your door about their party. So, it’s not always easy to get information to be able to make a choice about who you want to vote for.

Despite that, our Champions did know about The Conservative Party, SDP (Social Democratic Party), Liberal Democrats, Labour Party, Green Party, Heritage Party and The New Forest Party. There are lots of options and you can talk to your friends and family and get ideas to help you make a choice about who to vote for.

Ellie voted by post – you need to register to do this before the election. Ellie’s Mum helped her do this online.

    

Voting in person

Some people prefer to vote in person. David said that it is too far to walk to the polling station, so he needs to ask for help / transport to get there.

Remember your Photo ID to vote in person.

If you are voting on your own and don’t know what to do, you can always go into the polling station and say “I am here to vote, please can you tell me which desk to go to.”

The helpers can’t actually tell you which party to vote for – that has to be your choice.

Apparently, all the polling station staff have been trained to look out for sunflower lanyards – so they know that people may want to be offered extra help. So, you can wear one if you have one.

More participation

Changes (set out in The Elections Act 2022) are designed to boost the political participation of people with disabilities in voting and standing as political candidates. The Local Government Association provides support to disabled councillors and those considering standing for election to their local council.

You can read more about it here: https://commonslibrary.parliament.uk/research-briefings/cbp-9718/

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

How do you run an Inclusive Quiz?

Last month we ran our first ever in person fundraising quiz!

In lockdown we hosted one on Zoom but this time it was in a lovely setting – The Old Council Chamber in Reigate.

Being Include.org this was not a standard quiz. It was an inclusive one.

What helps to make a quiz inclusive you may ask? Well…here are a few things we did…

Role Model Hosting by Ciara

Although the Mayor of Reigate and Banstead was ‘host’ in that he invited us to use the Town Hall venue, he took a seat with one of the quiz teams on the night, and the quiz was presented by our Patron Ciara Lawrence.

Ciara recently spoke on our first ever Podcast and made it clear that as a person with a disability she is on a mission to ensure more of the world sees people like her for who they are and what they can do.

Well, we now know for sure…Ciara can brilliantly host a quiz evening, engaging a whole room of people with authority, style and warmth!

Something for everyone

People played in teams and we had a real mix of rounds and formats which all played to different people’s sensory strengths:

  1. Hearing – Name the song
  2. Signing – What does the Makaton gesture mean
  3. Taste and smell – Guess the crisp flavour
  4. Touch – Identify the household item hidden inside the sock
  5. Sight – Work out what the items are that we photographed very close up / micro
  6. General Knowledge – Answer audio / video questions from supporters like TV’s Dan Walker, Marcus Ramtohul (also in our first Podcast) DJ SUAT and Cllr Jonathan Essex
  7. TV knowledge – Easy Read questions from The Include Champions

We’re delighted to share the TV Quiz questions as the next FREE Easy Read resource in our series. Download Here (audio version to follow very soon):

Inclusion Wins!

There is always more to be done in terms of inclusion. But we did our best with limited resources and we were delighted that the team that won The Include Quiz was a mixed group of people – some of whom only met each other that night. Meeting new people is not always easy for people with communication needs, so that in itself was a big win.

This team, called “The Team That Shall Not Be Named”, included volunteers, choir members and parents. There were people with autism and visual impairment, playing alongside people without additional needs. There were volunteers who have literally just joined Include working alongside members who have been around for years.

We know that there was a team with regular quiz winners in it who were defeated on this night. But this was not a regular quiz!

So that’s a win in our book.

Want to make your own event inclusive?

If you want to host an inclusive event why not speak to The Include Champions Group to get their ideas and tips based on their lived experience of being a person with a communication need and/or disability? Enquiries to info@include.org

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

What is Co-production, and is it important?

The Include Champions Group is a lived experience consultancy team, generating ideas, feedback and free accessible resources on important topics. Between us, group members have real world experience in of learning disabilities, autism and other communication needs.

Our latest FREE Easy Read resource is about Co-production. It helps to explain what Co-production is and why Include puts it at the heart of everything the charity does.

An audio version is on SoundCloud

Working together

Our dedicated Champions Group members meet every week via Zoom, and there is always something important to discuss, analyse and provide feedback on.

Last week we had an invite from Lloyds Bank seeking the input of people with additional needs. This is so the bank can try to design their services with everyone in mind.

We had a special guest on the Champions Group Zoom session last week – Cathy Wood who has joined Include’s Board of Trustees. She said:

“I was delighted to hear that Lloyds Bank are inviting Include members to provide feedback as experts by experience of what it is like to use their services with a communication need.”

Cathy W – Trustee of Include.org

Philip from the Include Champions Group said this;

“It makes us feel happy that they want our help. I’ll feel like I’ve achieved something and the bank is being helpful by asking us.”

Philip – Include Champion

We can help others

The Champions can teach services about their experiences and what helps them to communicate well.

For example, the Champions Group help design training for health professionals, to help them understand how to support people with communication needs in hospital.

The Champions can also help to check documents to make sure they are accessible. For example, the Champions worked with The Samaritans to make sure their flyer was easy to understand.

Trustee Cathy sums up:

“It was great to get more insight into the important work that The Include Champions Group does. Ensuring everyone has a clear idea of what Co-production is, and why it is important is such a valuable piece of work. We hope many organisations and individuals will make use of this Easy Read explainer.”

Please email us on info@include.org if you think you might like some help from The Include Champions Group.

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

Hello…we are the Champions!

Claudia, our new Speech and Language Therapy Assistant, who we introduced you to in December’s blog, has been getting to know The Include Champions Group a bit better.

We’re really proud of the Champions Group because they do some really important things, and we’d like everyone to have a chance to get to know the group better – not just Claudia!

So, our latest FREE Easy Read resource is made by the Include Champions about the Include Champions! It explains what the group does, why and how – all presented in an Easy Read format.

FREE Audio format on SoundCloud.

In summary, The Include Champions Group is a lived experience consultancy team, generating ideas, feedback and free accessible resources on important topics including the Mental Capacity Act and Inclusive Communication.

Members have real world experience of learning disabilities, autism and other communication needs.

Dedicated group members meet every week via Zoom, and there is always something important to discuss, analyse and provide feedback on.

Time to Talk Day (2nd Feb), which encourages people to have conversations about mental health, seemed like a good day to re-share two of the Easy Read resources produced by our group:

🗣 Kind Communication
👂 Listening Skills

As our CEO Alix says in her guest blog for Browning York; “Today is ‘Time to Talk’ day – a day designed to promote conversation and communication to benefit everyone’s mental health. Let’s also think about the communication which uses more than words to include people – the biggest kindness of all.”

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead

Claudia and the Easy Read Christmas Quiz

At about the same time shops started selling Christmas items, Claudia joined the Include staff team.

Here she introduces herself and our free Easy Read Christmas Quiz.

“I’ve joined Include as a Speech Therapy Assistant.

Having Attention deficit and Hyperactivity disorder (ADHD), means that my brain is wired differently from what is considered normal. In other words, I am neurodivergent just like most Include members. I only found out I had ADHD at the end of my Master’s degree in speech and language therapy, when multiple social barriers made life very difficult.

The challenges of being a highly functional young neurodivergent adult, made me realise that much needs to be done to implement the social model of disability in our society. In other words, much needs to be done for society to start seeing that impairments are most often caused by social barriers. With this in mind, I knew I had to somehow be part of Include when I saw their new speech therapist job opportunity. So, I applied even though I only fully qualify as a speech therapist next January and I live 90 miles away.

Joining Include

From day one, I felt welcomed and comfortable enough to share my neurodivergence with senior members of staff. Not only I felt incredibly supported, but also felt that my neurodivergence was seen as a strength.





It is really amazing to find organisations such as include! Indeed, seeing difference as a valuable asset is at the core of the organisation culture and this was clear from the day I interviewed for the job. To my great surprise, an include member who has a learning disability, was part of the interview panel. If our society was as inclusive as Include, experiencing this would not have been a surprise for me. Nevertheless, I was thrilled to see small changes towards a more inclusive world and certain that I had made the right decision by applying to Include!

Working with The Champions Group on the Christmas Quiz

The Include Champions Group sessions do more than just collaboratively produce content with people that have communication difficulties. From the first session, I felt a sense of union and friendship between all members of the group. Just like when friends meet, these sessions start with members spontaneously sharing how their week was and things they are looking forward to.

You will find the free audio format when you click here: SoundCloud

Alongside the collaborative work, group members also discuss various topics of their interest. This was no different at the last champions group session, where we jointly worked on the Christmas quiz.

Within this session we not only worked on the quiz but discussed different Christmas traditions.

Having in mind that I am Portuguese and Christmas traditions are quite different from England, this was such an interesting conversation!

I was very surprised to learn that traditionally some people in England set their Christmas pudding on fire and the champions were surprised to learn most Portuguese people eat salted cod with their Christmas dinner.

I suppose what made this conversation intriguing was that our differing perspectives on what constitutes a “traditional” Christmas were acknowledged as part of our world’s diversity. To put it simply, Christmas traditions are just forms of Christmas celebrations. Just like gestures, signs and body language are just forms of communication. If all forms of communication are equally embraced, people with communication difficulties have fewer barriers and fewer difficulties. This is what the social model of disability theorises and what Include.org believes!

If you are reading this blog, you are probably already contributing to this. Include is here to help if not!

We wish you all a merry Christmas and a more inclusive happy new year too.”

Penny Sims
Penny Sims
Communications, Fundraising and Partnerships Lead